How Does Cancer Affect Mental Health for Cancer Patients?

Cancer DOES Affect Mental Health

Before and After Treatment

Mental Health Issues in Cancer Patients

Does Cancer Cause Mental Health Issues?

A cancer diagnosis is life-changing and can often lead to patients and caregivers experiencing mental health issues.

How Many Cancer Patients Suffer from Mental Illness?

It is estimated that 8-24% of cancer patients suffer from mental illness related to their diagnosis and treatment. However, these statistics are likely artificially low because some mental health issues like depression mimic cancer symptoms. According to a study out of the UK, 1/3 of cancer patients experience a mental health concern during or after treatment. Research does show that youths and young adults are at a greater risk of mental health issues than adults with a cancer diagnosis.

Families and caregivers can also experience mental health issues after cancer treatment.

How Does Cancer Affect You Emotionally?

Research shows that for both caregivers and patients, mental health issues can lead to:

Inability to focus on treatment decisions significantly slows down the treatment process
Failure to make follow up appointments
Inconsistency with medication

Pediatric cancer challenging and traumatic for patients and their families. Children undergoing cancer treatment are at a higher risk of developing mental health issues, including distress, depression, and anxiety.

Emotional Distress

What is Emotional Distress?

Emotional distress is described as an unpleasant emotion, thought, and feeling. Distress affects how one might think, feel and act.

It is normal for both patients and caregivers to experience distress after a cancer diagnosis, however, when it becomes debilitating is when there is a reason for concern.

Emotional Distress Symptoms

The symptoms of severe distress are:

Thinking about cancer/death all the time
Feeling overwhelmed to a point of panic
Being excessively irritable and angry
Feeling hopeless
Having trouble sleeping
Questioning belief and faith that once gave you comfort
Having trouble concentrating

Depression

What is Depression?

Depression is mild or severe sadness over a period of time. Research shows that 1 in 4 people diagnosed with cancer experience depression after diagnosis.

Depression Symptoms

Here are some of the other signs to look for in both patients and families:

Never-ending hopelessness and sadness
Irregular sleep can either over-sleep or sleepless
Loss of interest in hobbies
Pervasive thoughts of death or suicide
Trouble focusing, concentrating, or making decisions

Anxiety

What is Anxiety?

Anxiety is described as a feeling of dread, consistent worry, or being on edge. It is common for both cancer patients and their families to develop anxiety after a diagnosis.

What causes Anxiety?

After a cancer diagnosis, anxiety may be triggered by:

The fear of treatment and/or side effects of treatment
The fear of cancer spreading
Concern over the change in family/relationship dynamic
Fear of death

Types of Anxiety

There are two types of anxiety – acute anxiety, and chronic anxiety.

Acute Anxiety

Acute Anxiety Symptoms

Acute anxiety his is when one experiences short bursts of symptoms such as;

Rapid heartbeat or heart palpitations
Chest pain
Shortness of breath
Feeling suffocated
Sweating or chills
Dizziness
Trembling
Abdominal pain

Chronic Anxiety

Chronic Anxiety Symptoms

Chronic anxiety often manifests in the following symptoms:

Muscle Tension
Difficulty breathing and focusing
Excessive worrying
Irritability
Fatigue

Coping with Pediatric Cancer

Coping with mental health issues is a critical aspect of pediatric cancer care. There are several strategies that patients and their families can employ to manage these challenges along their pediatric cancer journey.

Photo Credit: Children’s Hospital of Philadelphia

Talk Therapy

Getting in touch with a board-certified psychologist and/or Psychiatrist will help you learn tools to improve coping skills, re-shape negative thoughts, and develop an efficient support system for all parties included.

Support Groups & Communities

Find people you can to relate to who have gone through mental health issues during cancer treatment. Seek out help from Here to Serve, a pediatric cancer nonprofit that assists with the journey at home. Like the popular adage goes, “It takes a village.” Seeking and building communities around the diagnosis (such as Here to Serve) will help alleviate a lot of pressure and allow you to find additional support for yourself and your family.

Resources like support groups can be therapeutic for a lot of patients and their families. Relating to others experiencing this traumatic experience can help people feel less alone and more understood in their pediatric cancer journey.

Medication

Should symptoms persist, contact a certified psychiatrist and get on the proper medication. This helps to reduce symptoms to allow you to function normally. It’s recommended that prescribed medication be used in conjunction with talk therapy and counseling for the best results.

Should you, your family or a friend need additional support at home after a cancer diagnosis, Here to Serve has many services and resources dedicated to helping you and your family during a cancer journey. Get Help at Here to Serve.

Gray May – Brain Tumor Awareness Month

Gray May - Brain Tumor Awareness Month

Supporting the Brain Tumor Community

Brain tumor awareness is crucial, especially in the case of pediatric cancer. Going gray in May is your opportunity to promote the needs of kids with cancer.

What does “go gray in May” mean?

You might start seeing #GrayMay and #GoGrayInMay on social media in May to recognize Brain Tumor Awareness Month. The “gray” in those hashtags represent gray matter, which is the color of the brain cortex, which contains nerve cell bodies.

When is Brain Tumor Awareness month?

Since a United States Congressional resolution was first passed in 2008, organizations across the country are taking the opportunity to focus attention on brain cancer annually during the month of May.

How many people have brain cancer in the US?

Brain cancer affects nearly 700,000 people in the U.S. alone.

Childhood brain cancer statistics

The statistics regarding brain tumors in children under 19 are upsetting. Pediatric brain cancer affects more young people than most are aware.

What are the most common pediatric brain tumors?

According to the American Cancer Society, brain and spinal cord tumors are the second most common cancer in children. These types of cancers account for nearly 25% of childhood cancers. Over 4,000 children and teens are diagnosed with brain and spinal cord tumors each year.

Fortunately, the 5-year survival rate for all combined types of brain tumors is about 75%, but this rate varies drastically. For example, Glioblastoma is a very aggressive cancer often occurring in the brain, and the survival rate is only about 20%.

According to the National Brain Tumor Society, brain tumors and cancers affect Americans from all walks of life. Still, the statistics in young people under the age of 19 are heart-wrenching, and the disease has a tremendous impact on the quality of life for the patient and their families.

Approximately 70% of all brain tumors are benign, and 30% are malignant.
Over 18,000 people die from a malignant brain tumor each year.
Brain tumors are the most common solid cancer in people ages 19 and younger in the United States.
Pediatric brain tumors are the leading cause of cancer-related death among children and adolescents under 19.
Approximately 31,000 adolescents and young adults are estimated to be living with a brain tumor in the United States.

Causes of brain cancer

Certain types of tumors, such as medulloblastoma, are more common in children. In many cases, the exact causes of brain tumors in children are unknown. Still, according to research at the Mayo Clinic, most pediatric brain tumors are generally primary brain tumors that form in brain tissues. Healthy cells have mutations in their DNA; these mutations divide and grow at an increased rate. They spread while destroying healthy cells. The consequence is a mass of abnormal cells which develop into a tumor. The tumors will either be benign (noncancerous) or malignant (cancerous).

Brain Tumor Symptoms in Kids

The skull protects the brain, a fragile part of the body. There is a limited amount of extra space; as a brain tumor grows, this will cause pressure known as intracranial pressure. As this pressure occurs, symptoms might begin to develop. Johns Hopkins Medical University provides abundantly helpful information about children’s brain tumors. Some of the signs and symptoms they mention to be aware of:

Headaches
Seizures
Nausea and vomiting
Irritability
Lethargy and drowsiness

The above list is very general symptoms, so it does not automatically mean a brain tumor or cancer if you see one or even all of them. If you are concerned that your child or a loved one might have any brain issues, don’t hesitate to contact a health care professional and seek a thorough diagnosis.

Treatment Options for Pediatric Brain Tumors

If a tumor has developed, there are many treatment options. The three most common are:

Surgery – Most common in infants and young children. If the tumor is accessible and slow-growing, surgery might be the only required treatment for complete removal. There might be some neurological issues after surgery, but usually, they are only temporary.
Radiation Therapy – Beams of radiation target the tumor and tissue surrounding the area. This treatment may require several sessions to remove all cancer.
Chemotherapy – There are different forms of chemo available, pills taken orally or IVs given intravenously. The chemo is usually injected into the cerebrospinal fluid.

Here to Serve can Provide Guidance

A cancer diagnosis is news no parent or guardian ever want to hear. Pediatric It is a life-changing event that will affect all family members. Fear and confusion are just two of the emotions parent go through in the early days of learning this news. Where can you turn for support? Family and friends can provide emotional care during this time.

Here to Serve can help

A cancer diagnosis is news no parent or guardian ever want to hear. Pediatric It is a life-changing event that will affect all family members. Fear and confusion are just two of the emotions parent go through in the early days of learning this news. Where can you turn for support? Family and friends can provide emotional care during this time.

Many organizations that research and treat brain cancers and tumors highlight their cause during Brain Cancer Awareness Month. Here to Serve often does not get the spotlight in these efforts, but we are vocal, nonetheless! The hard work and dedication to spread brain cancer awareness and highlight resources continue throughout the year.

If you need additional assistance for day-to-day tasks, please reach out to Here to Serve and our Care Communities. We have helped many families with children suffering from brain tumors and other pediatric cancers. Our aid and care can ease your anxiety during a stressful time.

By Chris Smith.

National Nurses Week 2022: The Backbone of Healthcare

May 6-12

National Nurses Week is celebrated between May 6, National Nurses Day, and May 12, the birthdate of nurse Florence Nightingale. Nurses help deliver babies, assist with life-threatening ER crises, and, most importantly, are a pillar of support during your child’s cancer journey. Nurses specializing in cancer care are experts in chemotherapy, radiotherapy, side effects management, pain control, and general medical care of patients throughout their cancer treatment. Highly trained nurses take on the burden of some of the most complex and heartbreaking tasks in the medical world. As workers who perform essential healthcare tasks, nurses serve as the first point of contact for most patients. National Nurses Week honors their contributions and sacrifices and reminds us to thank these well-trained medical professionals who provide front-line health care!

The Role of Nurses in Cancer Treatment

Never is teamwork more critical than in nursing, especially during cancer care. Nurses work not only with one another but also with physicians, therapists, technicians, and others to facilitate healing and alleviate suffering. They all share a common goal, compassionate care for the well-being of the patient and the family. Did you know that nurses that specialize in caring for cancer patients actively take steps to get additional training and expertise? For example, amid rapid developments in treatments, technologies, and patient-care modalities, hematology/oncology nurses must show they’re up to date with emerging medical advancements in their field. Hematology/Oncology nurse certification is one of the ways nurses demonstrate their commitment to the art and science of patient-centered oncology care.

Specifically, RNs (Registered Nurses) or (APNs Advanced Practice Nurses) take additional education and certification in the specialty of cancer care or hematology/oncology. The process of accreditation involves a qualifying exam and continuing evidence of ongoing education and nursing practice. Pediatric cancer nurses are trained to understand all the factors involved in caring for kids with cancer such as leukemia, brain tumors, bone cancer, and more. They perform assessments, administer chemotherapy and other medications, monitor for side effects, and educate patients and families about diagnosis and treatment.

These nurses can be found in the hospital setting (inpatient unit and outpatient clinic), physician’s office, home health care, radiation center, or hospice/ palliative care service. Aside from administering physical treatment, hematology/oncology nurses possess skills to assess psychosocial needs and teach and support the patient through their treatment. Nurses come up with strategies to alleviate nausea/vomiting and pain, help a child/young adult with hair loss (body image), administer blood/blood products to alleviate anemia or thrombocytopenia (low blood platelet count) or support a patient through hospice/palliative care. Nurses are the essential backbone to care for children with cancer. They are the bearers of critical information to both patients and physicians.

How Can We Appreciate Our Nurse?

In most cases, Nurses are selfless. They typically do not expect anything extra for the care and help they provide, especially in the last few years when healthcare workers had to fully commit themselves to their front-line duties during the pandemic. When someone takes the time to thank you, even in the simplest ways, it has a massive impact on a nurse’s life. Now is the perfect opportunity to give a little back to a nurse who has touched your life.

Here are some Nurse “preferred” ways you can show your appreciation:

Handwritten Note – Your words are one of the most personal and easiest gifts for nurses. When someone takes the time to pen their thoughts and express their gratitude, it can profoundly affect someone. In addition, it serves as a historical piece to remember the family, and remember their story.
Sweets and/or Healthy Snacks! – Yum, who doesn’t love a good box of chocolates, candy, a fruit bouquet, or a fruit basket to snack on during a long shift? Of course, everyone loves sweets, but healthcare workers often need to care for their health. An assortment of healthy snacks such as protein bars, nuts, fruits, and veggies can help keep up energy during a busy, extended shift.
A Little Bling – Fun decorations for a nurse’s stethoscope are a great way to thank a nurse. A stethoscope is an extension of a nurse and is required to do many aspects of the job. Nurses can usually be seen around the unit or office with a stethoscope draped around their neck or plugged in the ears as a patient is being examined. There are tons of simple, inexpensive options to dress up a stethoscope. It also helps make your stethoscope more unique and recognizable, so they don’t lose it.
CAFFEINE! – Not many nurses can get through 12+ hour shifts, weekends away from family, and night shifts without some caffeine to keep them going. A gift card for their favorite coffee place, a mug with a bag of coffee, or a freshly brewed cup can go a long way. You can even send a gift card through email!
Compression socks – Compression socks make a great gift to thank a nurse. They are on their feet all day, tiring their legs and feet. A good pair of compression socks can make a difference in soothing aches and preventing swelling. It’s a gift that truly keeps on giving, and one pair can last a long time, providing many comfortable shifts.

As always remember that alongside your healthcare practitioners, Here to Serve can fill in gaps you may come across in the support you need during your child’s cancer journey. If you or a loved one needs compassionate care at home with meals, children, home, yard, finances, and so much more during medical treatment, do not hesitate to contact Here To Serve. Click on the Get Help button from our homepage to receive support! On behalf of Here To Serve we wish all Nurses a very Happy Nurses Week!

Florence Nightingale Nurses Pledge

“I solemnly pledge myself before God and in the presence of this assembly, to pass my life in purity and to practice my profession faithfully. I will abstain from whatever is deleterious and mischievous, and will not take or knowingly administer any harmful drug. I will do all in my power to maintain and elevate the standard of my profession and will hold in confidence all personal matters committed to my keeping and all family affairs coming to my knowledge in the practice of my calling. With loyalty will I endeavor to aid the physician in his work, and devote myself to the welfare of those committed to my care”.

By Sameera Rangwala, M.S., M.P.H

About the Author

Sameera Rangwala spent 15 years in the biotech industry. As a scientist and research professional, she uses her skills to blog and provides words of support to the cancer community.

All content on this blog is for informational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Celebration Ideas for Moms of Cancer Kids

Mother's Day 2022

Mother’s Day, Sunday, May 8^th, may be a tough holiday for mothers of kids with cancer. It is likely another day of the same constant fears passed without notice or fanfare. Moms and wives of cancer patients conquer daily challenges with superhuman strength, but they need rest and care just like the rest of us. Mother’s Day is an excellent opportunity to recognize mothers and their daily sacrifices for their families. Think about the mothers in your life who are devoting their days to caring for their sick children. Here are some celebration ideas for moms of cancer kids.

If you are wondering what you can do to celebrate or ease a mother’s burden in your life on Mother’s Day, first, listen to and study the mothers you wish to honor. It might not be best to ask them what they want. This puts the burden of planning on them and requires them to ask something of you—something that might be difficult for moms who feel they must conquer every challenge alone.

Instead, consider what you have heard them talk about. Study their routine and daily challenges. Last year, the Center for Global Development reported that women took on 173 additional hours of unpaid child care, about three times as many hours as men. Consider if they are in physical pain from stress and need an hour to do yoga or a gift card for a massage. Do they need respite? Are they exhausted figuring out how to get dinner on the table each night? If you’re listening and watching, it won’t be difficult to find a way to help. If you have a mom with a child battling cancer in your life, consider these ideas for how to make their Mother’s Day extra special.

Make Time for Mom

Make a plan for the mom to spend time with their kids that does not include caregiving or other home chores. When one child is battling cancer, parents tend to devote all their time and energy to supporting that child and their care. The other children are also living through a world-shattering event, but it can be impossible for a parent to make as much space for them as they deserve. No parent wants to prioritize one child over another, but the immediate, all-encompassing needs of cancer treatment cannot be minimized.

Here are some ideas to honor mom on Mother’s Day

Decorate your mom’s door or give flowers!
Watch a movie or show together, side by side.
Get creative: Make mom a video, a music playlist, or a piece of art!
Do a tea party outside or take a short trip to a tea house!
Make a homemade gift; craft a wreath!
Travel virtually to a museum or tour the world’s prettiest garden if you can’t get out!
Give her a manicure and pedicure either at home or at a salon
Make Mother’s Day cards with the kids
Make breakfast in bed
Help tackle her “to do” list
Give her a hand and foot massage with moisturizer
Go to a flower shop or the mart and make an arrangement

Make sure that all mom has to do is show up.

Also, you can give mom time to spend with their spouse, siblings, or friends. Because of cancer treatment’s complex and life-altering nature, spouses can neglect each other or pull away from other vital relationships. Every person, super-mom or not, needs support, and creating time to connect with her loved ones can be the greatest gift. If you can plan a gathering, whether it’s a day away or just a nice meal together, you can reduce their burden and allow mom to enjoy the day.

Help Her Feel Her Best

If you have the means, paying for a mother to get her hair done or buy a new outfit she’s had her eye on can be a great way to show you care. If she likes having her nails done, maybe accompany her to a manicure! Most moms of sick kids neglect seemingly superficial things like clothes and haircuts. But feeling bad about how you look can be a silent weight that adds to the already enormous volume of pain faced by mothers with sick children.

Clothes and hair cuts are just two ways to help mothers feel better about themselves. Even something small like a nice moisturizer or a decoration for their home can be something that she continues to use or look at for weeks, reminding her of your gesture of love and taking a moment to care for herself.

Give Her Space to Accept Gifts

If mom doesn’t have time to accept a little pampering right now, be ready to provide a rain check. For some, even a day of self-care can feel like an unnecessary burden in a time of crisis. Try to arrange something flexible, and make sure to allow space for the mother to make the best choice for herself.

If you want to make a kind gesture but know there is no time for celebration in your loved one’s life this May, donate to a cause that’s meaningful to them. Give them the gift of knowing that someone else’s life will be improved because of them. If your loved one has a sick child, or if you just want to support all mothers with kids fighting cancer, consider giving to Here to Serve, an organization that cares for families who have a child or parent of young children fighting cancer.

Here to Serve provides wraparound services to support families on their cancer journey, including organizing online Care Communities that can provide meals, take care of household tasks, provide child care, and help with holiday celebrations. In addition, here to Serve maintains a robust database of resources to help families connect with organizations that can help. Consider giving a gift to mothers in the most challenging time of their lives by donating today.

By Kelly Markus

About the Author

Kelly Markus studied Film and Television and has spent time on sets in Los Angeles. Originally from the East Coast, she has moved back home. Since 2020, she has decided to refocus on writing. Having seen loved ones battle cancer, blogging for Here To Serve is close to her heart.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Coping with Stress After a Child’s Cancer Diagnosis – National Stress Awareness Month

Coping with Stress After a Child's Cancer Diagnosis

National Stress Awareness Month

A childhood cancer diagnosis is one of the most intense, disruptive, and enduring stressors parents can have. Stress can be debilitating if it’s not managed correctly, especially when the source of it comes from a deadly illness or the loss of a loved one. Time stands still, and other life responsibilities take the back burner as your child becomes the number one priority. There is no better time to discuss parents’ stress after their child’s cancer diagnosis than during Stress Awareness Month, held every April since 1992. Health care professionals and health promotion experts across the country join forces to increase public awareness about both the causes and cures for our modern stress epidemic. As we all have experienced in unison, you don’t need to be an expert to know that stress levels have risen exponentially in many households over the last few years. Imagine adding cancer to Covid! It becomes imperative to take time to de-stress so that your family’s cancer journey has the best outcome for you and your child.

What is Stress?

Stress is a normal human reaction that happens to everyone. The human body is designed to react to stress. When you experience changes or challenges (stressors), your body produces physical and mental responses. That’s stress. What happens to your body physically when stress kicks in? The body’s autonomic nervous system controls your heart rate, breathing, vision changes, etc. Its built-in stress response, the “fight-or-flight response,” helps the body face stressful situations. When a person has long-term (chronic) stress, continued activation of the stress response causes wear and tear on the body. Physical, emotional, and behavioral symptoms develop.

Here are some physical signs that might indicate you are in stress mode:

Increased aches and pains
Chest pain or a feeling like your heart is racing
Exhaustion or trouble sleeping
Headaches, dizziness, or shaking
High blood pressure
Diabetes
Muscle tension or jaw clenching
Stomach or digestive problems
Weakened immune system

Emotional and Mental Signs of Stress Include:

Anxiety or irritability
Depression
Panic attacks
Sadness
Drinking alcohol too much or too often.
Gambling
Overeating or developing an eating disorder
Starting to smoke or increasing smoking
Using drugs

If you feel like any of these symptoms have significantly increased, especially since your child’s cancer diagnosis, you should speak with a mental health professional. It can be challenging to acknowledge bad habits that form because of stress, especially when you think it’s making you feel better or helping you cope with the everyday stressors of taking care of your child. However, these declines in physical and emotional health often add up and can cause more destruction to you and your ability as a parent and caregiver. So, it’s okay to get help and fast! We all have a different capacity when it comes to stress, some can take on a heavy load, and others are impacted quicker despite the amount of stress, and that is okay because we are all wired uniquely.

Statistics

According to the American Phycological Association, Americans are one of the most stressed out in the world. The current stress level experienced by Americans is 20 percentage points higher than the global average. The country’s rate is similar to Louisiana’s, the most stressed state. 55% of Americans are stressed during the day. The amount of stress is compounded even further when a loved was ill. These statistics are not meant to scare you but for you to realize that you are not alone in the fight against stress. Stress is often a part of life despite our best efforts, which many people have learned to tolerate. And while it’s incredibly prevalent in the United States, understanding stress and the causes of stress and how to tackle it early can make a world of difference.

Coping Mechanisms on how to deal with stress after a child’s cancer diagnosis

Cancer is a significant stressor for patients and their families. A combination of essential supportive interventions and time helps many families cope with the stress that cancer and treatment may bring to the entire family. After a child’s cancer diagnosis, some patients, siblings, and caregivers develop persistent traumatic stress reactions, including post-traumatic stress disorder (PTSD). PTSD is a condition that develops after a life-threatening experience that makes a person feel fear, helplessness, or horror. People with PTSD experience persistent and unwanted thoughts about the experience; nightmares; a desire to avoid people, places, or things associated with the experience; emotional numbing; feeling distant or cut off from others; and physical arousal (being anxious and easily startled). Your child is the most crucial reason you consider early stress prevention during and after your cancer journey. Parents may think they are protecting their children by hiding life’s stresses. Being an adult carries a multitude of pressures, and parents may try to keep their anxieties to themselves. However, a recent study in the Journal of Family Psychology indicates that children may pick up on their parents’ suppressed stress, increasing their stress levels. The stress your child may pick up from you may cause issues with how they cope with their cancer diagnosis and responsiveness to treatment. The best way to prevent this is to take care of your stressed self.

It can be hard to find the time to cope with stress, but there are some impactful and convenient ways to help yourself or a loved one:

Stay Positive
Laughter has been found to lower levels of stress hormones, reduce inflammation in the arteries, and increase “good” HDL cholesterol. Try and get a little giggle in every day, tell a joke, watch a comedy flick, or make someone smile with a funny face!

Meditate
This practice of inward-focused thought and deep breathing has reduced heart disease risk factors such as high blood pressure. Meditation’s close relatives, yoga, and prayer can relax the mind and body. An excellent guided option is using an app such as Headspace that provides mindfulness meditation right from your phone.

Exercise
Every time you are physically active, whether you take a walk or play tennis, your body releases mood-boosting chemicals called endorphins. Exercising not only melts away stress it also protects against heart disease by lowering your blood pressure, strengthening your heart muscle, and helping you maintain a healthy weight. Even just 20-30 minutes a day can make all the difference!

Unplug
It’s impossible to escape stress when it follows you everywhere. Cut the cord, and avoid emails and TV news. Take time each day, even for 10 to 15 minutes, to take the edge off your stress. Simple things like a warm bath, listening to music, or spending time on hobbies, can give you a break from the stressors in your life.

Online Support Groups
If you don’t have health insurance, online support groups can be helpful. Look for local groups that are evidence-based, and focus on the area you’re struggling with, such as coping with cancer.

Employee Resources
Most employers are offering some level of therapy for their employees. Ask your human resources department about employee assistance programs that you can take advantage of for free or at little cost.

State Health Department
Your state’s health department website may have helpful mental health services, including emotional support helplines, tips for mental wellness during an emergency, and a list of behavioral health providers.

Health Insurance Provider
If you decide you need to seek professional support from a therapist or licensed mental health counselor, your health insurance provider is an excellent place to start looking. Health insurance companies must cover services for mental health, behavioral health, and substance-use disorders comparable to physical health coverage. The company should have a database of clinicians who are accepting patients.

Get Help Through the Cancer Journey

If you are a family with a child who received a new cancer diagnosis, or if you know of a family who finds themselves in this challenging situation, please contact Here to Serve. Our team is ready to help families navigate this challenging new world in light of a childhood cancer diagnosis and provide support in many different ways. Please click on the Get Help button from our homepage. Our team at Here to Serve wishes you a beautiful spring season filled with less stress and an abundance of peace, love, and happiness!

By Sameera Rangwala, M.S., M.P.H

About the Author

Sameera Rangwala spent 10 years in the biotech industry. As a scientist and research professional, she uses her skills to blog and provide words of support to the cancer community.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Recognizing a Nation of Volunteers – National Volunteer Week April 17-April 23

Recognizing a Nation of Volunteers

National Volunteer Week April 17-April 23

In 1974 a Presidential Proclamation established National Volunteer Week in the United States as an opportunity to recognize Americans that dedicate their time and energy to causes and organizations they care about deeply. Although officially recognized for nearly 50 years, this country’s history of volunteerism goes back to its very beginning. The first large-scale volunteer effort was the new country’s recruitment of soldiers for the Revolutionary War. As the country grew, so did volunteering and creating organizations devoted to more philanthropic causes. Nonprofit groups such as the United Way and American Red Cross were founded in the 1800s and still are helping people today. With the arrival of Springtime, we celebrate National Volunteer Week from April 17 – April 23. Please take a moment to think about those around you who give up their free time to help others and consider opportunities where you can assist in the future.

The Emergence of Virtual Volunteering

Helping families with cancer, rescuing lost animals, delivering food to those less fortunate are just some of the volunteer activities everyday Americans were helping with when the entire world went into lockdown two years ago. All of those activities did not stop when COVID-19 spread across the globe. Many nonprofit organizations reconfigured their volunteer programs for virtual support or limited the number of volunteers, or temporarily suspended volunteer operations due to safety concerns. The events of 2020 did force organizations to rethink and find new ways to continue their missions to help others. Here to Serve, the nonprofit that helps families on their cancer journey, reenvisioned their delivery model of volunteer services with more safeguards put in place to avoid contact while still supporting cancer families.

The concept of “virtual volunteering” is not new; the term was first used in the mid-1990s by Steve Glikbarg, the co-founder of the organization Impact Online. With Smartphones, laptops, and internet access available to almost everybody, virtual volunteering is easy. Websites such as VolunteerMatch, Taproot, and JustServe, aid in providing a list of volunteer opportunities in your area, helping to eliminate long hours of research. Virtual volunteering offers remote options for providing nonprofit organizations support in accomplishing their missions. Partaking in activities such as fundraising, phone calls, social media, office admin, or copywriting are tasks that a volunteer can perform from the comfort of their home. Virtual volunteering might also mean assembling activity kits for kids in need through such organizations as Project Helping, which will send a Kynd Kit directly to your home. Many of these opportunities also offer flexibility so that you can volunteer around your schedule. 21st technology has helped to reshape volunteering for the better.

Volunteering Helps Everybody

Why do people volunteer? The reasons are numerous. Some people have a personal connection to a cause, and they want to give back. It might also be a great way to make new friends, share or improve your skills, or be helpful with your spare time. Whether the reasons are altruistic or self-serving, volunteering does help all parties involved. Individuals volunteering can receive several positive benefits from giving their time and energy to a cause. Benefits can include positive effects on mental and physical health. A task that helps others offers a sense of purpose, increasing self-esteem and lowering the risk of depression and anxiety. Performing outdoor activities like cleaning up a beach on a warm summer day can provide low or no-cost physical exercise. A 2013 study conducted by Carnegie Mellon University found that “people over the age of 50, who volunteered regularly were less likely to develop high blood pressure than non-volunteers.”

The positive advantages of volunteering are not just for individuals looking for a way to help; nonprofit organizations benefit tremendously from having volunteer staff to assist their causes, especially skilled professionals who are retired. Many nonprofits work on shoestring budgets, so having non-paid volunteers helps these organizations survive and thrive if those volunteers are professionals in their fields. During the National volunteer week, we celebrate the spirit of volunteering. The federal agency Corporation for National and Community Service (CNCS) found in 2018 that over 77 million adults volunteered through various organizations. This work equates to nearly 6.9 billion volunteer hours. The Independent Sector, an organization that brings together nonprofits and other foundations, releases an annual calculation of the value of a volunteer’s time based on an hourly rate. In 2021, the rate was over $28 per hour. That equals over $193 billion that nonprofits benefit from by having volunteer support. These staggering figures and statistics show the value and importance of volunteers.

Volunteering at Here To Serve this National Volunteer week

Here To Serve is a nonprofit organization founded by Katie and Silvio Quintas in 2011. They offer practical support through their cancer-journey program. Here to Serve’s mission is to lift the burdens of families with children impacted by cancer. Volunteers are critical to their success and help assist families through complex cancer journeys. If you are visiting our website and would like to help families in need, please take a moment to view our current volunteer opportunities. Any practical help and professional experience you can offer will help cancer-impacted families so that parents can devote their attention to their children.

By Chris Smith

About the Author

Chris Smith is a Here to Serve volunteer from the San Francisco Bay area who himself is a cancer survivor. He uses his professional experience as a technical writer to give back and provide clear and meaningful information for families with a child battling cancer.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

April is National Donate Life Month!

The life-saving power of organ donation

Currently, 1,900 children under 18 years old are waiting for organ transplants. 25% of those children are under five years old. For kids with cancer, who are often put through incredibly grueling treatments, organ transplants can be necessary to save their lives. April is National Donate Life Month, which seeks to bring awareness about the life-saving power of organ donation.

Established by Donate Life America and its partnering organizations in 2003, National Donate Life Month seeks to get more people to sign up for life-saving donor registries. The last week of the month focuses specifically on the pediatric transplant waiting list. National Pediatric Transplant Week is April 24th-30th. During this week, Donate Life America encourages people to share candidates’ patient stories, honor donor families, and celebrate milestones recipients have reached thanks to organ donation.

Stem Cell and Bone Marrow Transplants

Most people have heard of cancer treatments, including chemotherapy, surgery, and radiation. Another essential part of the treatment plan might be stem cell and bone marrow transplants. Healthy stem cells from bone marrow or umbilical cord blood are introduced for this type of treatment to replace diseased or damaged cells. These healthy cells can either come from the patient (an autologous transplant) or a donor (an allogeneic transplant). The first people considered for donors are often family members. Still, if no family members are genetic matches, patients can try to find a match from the National Marrow Donor Program. Over 65% of the 18,000 people who hope to receive blood stem cell transplantation need to find donors outside of their families.

Leukemia is the #1 childhood cancer, and it is the one most likely to benefit from bone marrow or stem cell transplants (SCT). SCT is often used for high-risk children whose leukemia is likely to relapse after remission. This type of treatment results in remarkably fewer relapses.

Cancer treatment damages stem cells, which are vital for fighting infection. Before receiving a stem cell transplant, children with cancer are given an extra high dose of chemotherapy to destroy their damaged bone marrow. The process of getting replacement stem cells takes weeks, and during this time, the child is highly vulnerable to infection.

Nearly 60% of Americans waiting for an organ transplant belong to minority groups. While an organ can be transplanted to anyone, there is a greater chance of longer-term survival if the genetic background of the donor and recipient are closely matched. This makes it particularly important for people of every ethnic background to become donors.

Access to this successful form of treatment is essential, but it is only possible if people sign up to donate. Without a wide range of donors, patients are less likely to find matches, and the treatment cannot proceed.

Here are some additional important events during the National Donate Life Month:

Donate Life Living Donor Day – April 6th

On this day, we celebrate and thank living organ and tissue donors. Living donors are particularly important for children being treated for cancer because treatment can cause liver problems. Donors can donate part of their liver, and it will grow in the recipient’s body. Most children ages 1-5 are waiting for a liver, heart, or kidney transplant. Liver and kidney transplants can both be done from living donors.

National Donate Life Blue & Green Spirit Week April 16-22nd

During this week, Donate Life encourages a whole week of celebrating volunteers, doing crafts, thanking healthcare heroes and spreading hope.

National Donate Life Blue & Green Day – April 22nd

Spirit Week culminates with Blue & Green Day. On this day, you can wear green and blue to emphasize the importance of registering as an organ, eye, and tissue donor.

Some events happen outside of April. Other National Observances to add to your calendar are National Minority Donor Awareness Month in August, National DMV Appreciation Month in September, and National Donor Sabbath in November.

Other Ways to Help

Please register as an organ donor! Visit DonateLife.net to register to become an organ, eye, and tissue donor. On bethematch.org, you can join the bone marrow registry or donate umbilical cord blood. Another easy way to become a donor is to register the next time you visit the DMV.

This month, consider how you can immediately and directly support families battling cancer. As I shared in this article, patients receiving stem cell transplants can be in the hospital for weeks. During this time, the family needs extra help to stay healthy themselves. Their priority shifts to their sick child, but that doesn’t mean other pressures or responsibilities disappear. Here to Serve is here to help. Consider donating to Here to Serve this month or check out our volunteer opportunities if you’re interested in donating your time and talent.

For more information:
cancer.org: https://www.cancer.org/cancer/leukemia-in-children/treating/bone-marrow.html
HRSA Blood Stem Cell Registry: https://bloodstemcell.hrsa.gov/donor-information/donate-bone-marrow/joining-registry
Donate Life: https://www.donatelife.net/celebrations/
American Academy of Pediatrics: https://publications.aap.org/pediatrics/article/125/4/822/73165/Pediatric-Organ-Donation-and-Transplantation

By Kelly Markus

About the Author

Kelly Markus studied Film and Television and has spent time on sets in Los Angeles. Originally from the East Coast, she has moved back home. Since 2020, she has decided to refocus on writing. Having seen loved ones battle cancer, blogging for Here To Serve is close to her heart.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

It’s 2022; Why Do Demographic Disparities in Pediatric Cancer Still Exist in the United States?

It's 2022; Why Do Demographic Disparities in Pediatric Cancer Still Exist in the United States?

National Minority Cancer Awareness

April is National Minority Cancer Awareness month, and the truth is we didn’t need the global pandemic to reveal what we already knew regarding the care of minorities with cancer. The overall availability of quality resources and treatments for diseases and illnesses is most definitely disproportioned when considering race and socio-economic status. Why do these disparities still exist in 2022? More importantly, why are children with cancer still not getting sufficient care regardless of household income or where they reside on the national map?

Pediatric cancer survival has undoubtedly improved in the United States for the past five decades to over 80%. However, differing outcomes among children and adolescents with cancer still affect many in the United States. Current studies have pinpointed characteristics associated with families receiving insufficient medical care for their child with cancer. The most vulnerable populations are patients of low socio-economic status living in medically underserved areas with no private insurance and Black or LatinX ethnicity. Medically Underserved Areas/Populations are designated by HRSA (Health Resource & Service Administration) as having too few primary care providers, high infant mortality, high poverty, or a high elderly population. It’s important to note that demographics, such as Native Americans/Alaskan Natives, outside these main observations residing in lower socio-economic areas also significantly struggle to find adequate cancer care. However, the percentages are lower based on population size.

Need for Racially Diverse Medicine in Childhood Cancer Care

Multiple studies have demonstrated that minority people of color in the U.S. have worse cancer and cancer care outcomes than white people. One such large study published in The Journal of the American Medical Association found that in a cohort of 67,061 US children and adolescents, children and adolescents with racial/ethnic minority status had worse cancer survival compared with non-Hispanic white children and adolescents. Among non-Hispanic black and Hispanic (all races) children and adolescents, the disparity was generally more significant for cancer types with higher vs. lower relative survival rates. The differences in treatment of minority adults of color with cancer have been blatantly apparent, and unfortunately, this same risk is extended to minority children of color.

A child relies on their guardian to make sure they are fed, kept clean, and, most importantly, healthy. However, usually, children have no knowledge or control over what their parents can provide them, especially with a cancer diagnosis. It almost feels like children are caught in the crossfires of the unconscious racial bias that directly impacts the quality of their cancer care. There’s no biological basis for that. Instead, it is more likely that the health care system and society have varying biases towards persons who share different social conditions than their own. Social conditions are the places where people live, learn, work, and play. The giant pink elephant in the room and one of the many reasons the medical system seems to be failing members of historically underrepresented groups in the U.S. is conscious and unconscious bias and discrimination. If you didn’t realize before, then hopefully, you had an awakening during the Covid-19 pandemic that revealed again how minorities of color were at significantly higher risk of infection and mortality due to the virus.

Conscious and Unconscious Bias

A lack of racial diversity within medical professionals has been directly correlated with a negative experience during general care and, notably, the extended cancer care journey. Black, Latinx, and Indigenous people are vastly underrepresented as providers of health care. In terms of actual patient care, patients are more likely to trust providers that look like them. The best way to solve this problem is to have more workforce diversity, equity, and inclusion because it’s critical for improving health care equity for minority families. As National Minorities Health Month aims to bring awareness to health gaps in minority communities, many are left wondering how to make a difference in such a deeply rooted issue. The good news is that there seems to be a slow but present shift post-pandemic regarding cancer care equity. An increasing number of organizations are starting to understand the benefits of a diverse group of providers with various racial and ethnic backgrounds. In addition, the implementation of workplace diversity and inclusion training at many institutions will hopefully help providers confront their own biases to provide better and equal care for ALL patients, especially children with cancer.

Staying Diligent For Your Child

As a parent and/or caregiver of a minority child with cancer, how can you stay informed and find equity in your cancer journey? It’s important to know who to contact and where to go as soon as your child is diagnosed with cancer, especially if you feel like you don’t have adequate resources available to you. Understandably, a pediatric cancer diagnosis adds an immediate sense of stress and fear for you and your child. If you live in a commonly underserved area, you may not even realize that the care afforded to you is limited. But, as a parent, if something feels lacking, go with your gut because additional resources are out there to help you. An increasing number of organizations offer help to minorities affected by cancer, and culturally sensitive family intervention programs have been found to help families cope with cancer significantly. Please check out some wonderful organizations with current programs to support minority cancer families.

Somos Latinas Contra Cancer-A is a leading service and advocacy organization for Latinos around cancer issues. Provides cancer health education, patient navigation, and psychosocial family support group services focused on underserved, low-income, and Spanish-speaking women and girls.
Black Women’s Health Imperative identifies the most pressing health issues that affect the nation’s 21 million Black women and girls and invests in strategies, partners, and organizations that ensure Black women live longer, healthier, and prosperous lives.
Roswell Park Comprehensive Cancer Center-Has an entire program that specifically supports Indigenous people. Their goal is to reduce the impact of cancer on Indigenous communities regionally, nationally, and internationally.
American Indian Cancer Foundation-Working to eliminate the cancer burdens of Indigenous people through improved access to prevention, early detection, treatment, and survivor support.
Cure Childhood Cancer–Dedicated to conquering childhood cancer through funding targeted research while supporting patients and their families.

If you or a friend or loved one has had a child recently diagnosed with cancer, please reach out to Here to Serve for help. Here to Serve provides practical wrap-around support to families who have a child or parent of a child(ren) diagnosed with cancer. Just click on the Get Help button. Here to Serve is here to help!

By Sameera Rangwala

Is Laughter the Best Medicine? Using Humor to Heal

Is Laughter the Best Medicine?

Using Humor to Heal

What makes you laugh? A funny movie, attending a comedy show, or telling jokes with friends and family members? Most people don’t think about what makes them laugh, but they know when something is funny. Humor and pediatric cancer, not words that go together like, Abbott and Costello or Laurel and Hardy, but maybe there is a connection there? The act of laughing does affect the body and can produce physical and emotional changes. Humor cannot cure cancer, but scientific research has proven that humor during the cancer journey can help heal.

In 1999, researchers at UCLA’s Jonsson Cancer Center, Mattel Children’s Hospital, and The Semel Neuropsychiatric Institute studied the effects of humor on the immune system of children and adolescents going through agonizing medical procedures. The results concluded that when children watched a funny or uplifting video, they could better tolerate painful medical procedures, and anxiety levels also decreased. This study eventually led to the creation of the nonprofit organization Rx Laughter, whose mission is to create “therapeutic and educational programs that use the power of comedy care to improve coping, communication and quality of life for those struggling with serious emotional and physical challenges.”

Benefits of Laughter Therapy

Laughter Therapy has been studied and researched by many medical centers and universities across the globe since the 1960s. One area of exploration is humor’s benefits in the field of psychoneuroimmunology or the body’s ability to heal. Laughter changes brain chemistry and can boost the immune system, alter moods, reduce pain, and help alleviate stress.

Cancer in young people is tragic and often comes with pain and life-changing side effects. However, 21st-century medical advances help to increase the survival rate in children. According to the American Cancer Society, 85% of children with cancer survive five years or more. Having a skilled medical care team for a young child will increase the odds of survival. In addition, looking into simple alternative therapies can also aid in the cancer fight.

Positive Benefits of Laughter:

Endorphin Release-Laughter triggers the body’s natural chemicals produced by the nervous system and helps relieve pain and stress.
Immune System Boost-Laughter increases the immune cells by creatingInfection fighting antibodies.
Whole Body Relaxation-Laughter reduces physical tension in the body and aid in muscle relaxation for up to 45 minutes.
Increase Blood Flow-Laughter helps the heart improve blood vessel function and increases blood flow.

Laughter therapy is helpful to both the patient and caregivers. Using humor during the cancer journey can help relax the mind and body. The stress and uncertainty of being a primary caregiver increase the risk of sickness. Taking some time to simply laugh and find humor can release the anxiety of helping a young cancer patient. Finding something to laugh about together is an even better way to tackle the cancer journey. A nice benefit to laughter therapy is that it’s inexpensive and a low-risk activity with numerous benefits. Please consult with your child’s doctor; they might be aware of additional programs related to humor and laughter therapy.

Finding Humor During the Cancer Journey

Cancer is no laughing matter, especially when it strikes a young child, but trying to find hope in a time of uncertainty is a positive way to cope with the challenges of the day-to-day fight. There are organizations throughout the United States, helping children fight cancer. Finding something to laugh at during this time is difficult but not impossible. One young boy’s story can offer optimism and let everybody know that it’s okay to laugh, and it’s comforting to find humor in tragedy.

Andrew Mercier was a young boy diagnosed with Leukemia. He loved playing practical jokes and making people laugh. While in the hospital, Andrew received a “farting unicorn” stuffed animal with a remote-controlled fart machine sewn inside. Andrew would use his unicorn to make others laugh. It was a funny way to cope with a horrible situation. Unfortunately, Andrew lost his battle with Leukemia, but his humorous legacy lives on through the nonprofit organization Andrew’s Laughing Gas. The organization provides young children with “tooting” stuffed animals so that they can find a reason to smile, laugh, and just be a kid as they fight through the disease. These photos above are of Hazel Hammersley, a Here to Serve patient family, who also lost her battle with neuroblastoma, but she found ways to laugh and smile during treatment and make others do the same.

Here to Offer Stress Relief

It would be amazing if watching SpongeBob Square Pants could cure cancer, but that will never happen. But finding humor and partaking in the simple acting of a deep belly laugh can make a person feel better. Even if this is only for a few fleeting minutes, it can help the body and mind to heal during the cancer fight. Here to Serve is also here to help during this fight. Our Care Coordinators can assist with a needs assessment so that your mental and physical strength can rejuvenate. We support by helping with finances, providing child care, and doing household chores. Our help gives you extra time to spend with your child and just be silly and have some laughs when the time is right.

By Chris Smith

About The Author

Chris Smith is a Here to Serve volunteer from the San Francisco Bay area who himself is a cancer survivor. He uses his professional experience as a technical writer to give back and provide clear and meaningful information for families with a child battling cancer.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Acquiring Medical Supplies After a Cancer Diagnosis

Preparing Your Home

Medical gloves with sanitizer and thermometer

Getting medical supplies to make your home cancer-patient friendly

Most households have a small stock of general first aid items and over-the-counter medicines for sicknesses like the common cold. But, nothing prepares your home for an unexpected medical crisis, such as a pediatric cancer diagnosis. It’s natural and understandable that the first thing you want to do is get ahold of your emotional state as you gather the mental strength to be the pillar for your child while they begin the cancer journey. Alas, you must prepare your home and collect the supplies needed to make the process smooth and comfortable for your child.

Getting medical supplies to make your home cancer-patient friendly is very important. When going through cancer treatment, medical supplies are available that make life a little easier at home, and you may find them helpful as a caregiver for a child with cancer.

Preparing Your Home Ahead of Time!

Pediatric cancer treatment may require surgery, chemotherapy, radiation therapy, immunotherapy, or even stem cell transplant. Once you get home, you might need to create a recovery area in a specific room, like your living room or bedroom. No matter the treatment type, is your room prepared? Here are some helpful tips to consider when prepping your designated healing space!

Is there a window or door nearby for air circulation or to get natural sunlight?
Are there shades that can block out the sun if needed during the day?
Can you get to water quickly, and if not, a place for a pitcher of water to sit?
Do you have bedpans and/or urinals?
Do you have extra pillows or a reading pillow?
Do you have a lap tray for tablets, laptops, books or other materials needed while in bed?
Are there drawers or containers to keep medications organized?
Do you need new sheets or a mattress pad?
Are there electrical outlets nearby for medical equipment, computer, TV, or phone chargers? Do you need a power strip plug/surge protector?
Is there a place to put an erase board to keep important information within sight?
Is there a table or a tray table next to the bed?
Do you like what you see? Decorate with things that make your child and you feel good, like plants and pictures of your family or maybe their favorite superhero!

Recommended Medical Supplies To Get First

The list of home medical supplies you might need will vary depending on your child’s cancer diagnosis, type, and severity. Different treatment routes will have marked side effects that will range from mild to severe. The best thing you can do is be prepared and know the resources available. Here’s a list of medical supplies and equipment that you’ll undoubtedly need no matter what type of treatment is prescribed for your child.

Bath & Skin
- Shower Chair – It can be incredibly physically demanding to stand in the shower for even 10 minutes or sit up in the bathtub when you are fatigued. Shower chairs make bathing easy and take very little energy from the patient. If you or your loved one is experiencing fatigue from cancer treatment, this is a must-have item.
- Lotions, Ointments, and Moisturizers – For a cancer patient having the right skincare supplies goes beyond being a “luxury.” The same drugs that kill off the cancer cells also affect the growth of your skin cells. Most people know about the hair loss that comes with chemo, but treatments can also result in dull, graying skin that’s dry, sensitive, and irritated. Use products that are gentle, hydrating, and hypoallergenic. Avoid common allergens like fragrance, alcohol, preservatives, and botanical essential oils, which can be irritating or, even worse, cause an allergic reaction. Think about organic products that will cause no harm.
Bedside Commode
- Diarrhea and nausea are both side effects of chemotherapy, for example. There is often such an urgency that the patient may not make it to the restroom. Having a bedside commode makes it much more manageable. If you or the person you’re caring for is too self-conscious to use it, consider hanging a sheet around the commode (or using another type of divider) for privacy.
Mobility Help
- Metal Canes – for those who are independent enough to use a one-handed walking aid
- Forearm Crutches – used by those who have long-term or permanent mobility problems.
- Walkers – help you remain mobile by providing stability and support while walking.
- Rollators – walkers with wheels and brakes to eliminate having to lift the walker to walk. Brakes offer extra security when going down inclines. The walkers fold for transport, and many have seats so users can sit and rest when they get tired.
- Manual Wheelchairs – For patients that cannot walk at all on their own.
Disposable Wipes
- Wipes of all kinds are essential to have at your disposal. They can be great for specific uses such as disinfection of surfaces and equipment, cleansing the body, or sanitary purposes. Most importantly, disposable wipes are necessary when a patient experiences the common side effects from most cancer treatments, such as fatigue, vomiting, and diarrhea. Be sure to stock up on these!
Pill Pulverizer
- Cancer medications often require swallowing pills.This can be challenging for some children, especially if they have never had to do this before diagnosis. You might think using a spoon or a homemade gadget could do the trick, but these techniques often make it difficult to crush pills and/or risk losing a large portion of the medication. A pill pulverizer allows tablets to be crushed easily and put in a liquid. Smaller pieces are great for a child who has difficulty swallowing or who might need to take many pills simultaneously and who is having difficulty swallowing them together or consecutively. It is also great for radiation patients who have dry mouth, making it difficult to swallow pills. Click here to see an example!
Personal Protective Equipment (PPE)
- PPE is the equipment worn by health care professionals to protect them from contact with infectious agents. However, it’s also important that you have basic PPE for your home to keep your child and caregivers safe from infection. PPE for home includes N95 masks, booties for shoes, gloves, disinfectant, gowns, and alcohol prep pads, and don’t forget to include hand sanitizer and sanitizer wipes.

How to Get Low-cost or Free Medical Supplies

The cost of medical supplies can be an added and unforeseen expense for many cancer families. For help with medical supplies, first, check your insurance policy to learn whether these supplies are covered and under what circumstances. For example, Medicaid, Medicare, and some private insurance will pay for nutritional supplies and support for patients that need feeding tubes and other equipment for more than three months. Other possible sources of support are patient assistance programs offered by the product manufacturers. In some cases, a social worker through your hospital can find out what local agencies might provide discounts or additional cost savings on medical supplies.

Strategies to Afford Medical Equipment:

Rent instead of buying. Consider renting a hospital bed or patient lift (which helps move a patient from a bed to a chair, for example), especially if you temporarily need it during your child’s cancer treatment.
Ask about borrowing. Some assistive devices such as canes, crutches, and shower chairs may be available on loan for free or at low cost through a local civic organization, a nonprofit, or even your doctor’s office. Ask your doctor if they have a “loaner closet” where donated items are available.
Buy online. If you don’t need an item immediately, look for an affordable option online. For example, you might find a brand new bedside commode on Amazon for $40 with free delivery in two days. The same item at the local medical supply store could cost $100.
Shop at thrift stores. Many thrift stores carry medical equipment. For example, some Goodwill stores also have onsite mechanics who can fix equipment, make adjustments, or provide advice by telephone.

Programs that offer medical supplies free of charge or for a low cost include:

Blueprints For Pangaea – Reallocate unused medical supplies from areas of excess to areas in need. Contact a chapter in our home state.

The Healthwell Foundation is an independent, non-profit organization that helps patients with a chronic, life-altering disease afford their medications when health insurance is not enough.

Convalescent Aid Society – Provides communities in Southern California free loan of durable medical equipment for personal use to improve the quality of life during medical care.

The Durable Medical Equipment Aid Society – Provides in-home mobility and bath care durable medical equipment to individuals who lack the insurance or financial resources to secure mobility and bath care durable medical needed to assist in their daily living or in their recovery from an illness or injury (must be a resident of Los Angeles County or Ventura County).

Suppose you find that after reaching out to your healthcare provider, hospital administration, insurance, and cancer care program companies, you are still in need of essential medical supplies. In that case, we urge you to contact Here to Serve! We will do everything in our power to locate the supplies you need and connect you to direct resources for immediate help. Don’t hesitate to get in touch with us! Here to Serve provides countless services to assist families on their cancer journey including setting up ways to help that friends can assist with. If you’re looking for more personal ways to help, consider volunteering or donating to help families as they hurdle through the obstacles and challenges of caring for a child with cancer.

By Sameera Rangwala

About the Author

Sameera Rangwala spent 10 years in the biotech industry. As a scientist and research professional, she uses her skills to blog and provide words of support to the cancer community.

All content on this blog is for informational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Teens Who Battle Cancer Often Experience Mental Health Issues

World Teen Mental Wellness Day

As “World Teen Mental Wellness Day” is upon us on March 2, there is no better time to bring attention to the unique mental health challenges of teens who battle cancer. Statistics show that teens have higher rates of mental disorders overall than adults. For example, the National Comorbidity Survey Adolescent Supplement reports an estimated 49.5% of US adolescents (13-18 years old) have had a mental disorder. This compares to 21% of adults who have a mental illness. Additionally, rates of various mental health disorders in teens have been increasing each year.

When World Mental Health Day originated in 1992, it took 20 years before World Teen Mental Wellness day was created, finally giving due attention to teens with mental health challenges. The fact that it took nearly two decades for teen mental health to get attention points to two significant problems. The first is that we haven’t been collecting data on teens for very long. The second is that teen mental health is getting worse.

This lack of attention to teens with mental health issues is exacerbated when that teen is or has battled cancer. There are many reasons why teens are more vulnerable to mental illness. Teens experience pivotal life changes with little control over their lives or bodies. Adolescence is the time to establish your own identity, something as scary as it is exciting. Add a life-or-death battle with cancer to these current teen development issues, and you have the perfect mental health storm!

MENTAL HEALTH IN TEENS WITH CANCER

At this stage in their lives, teens are looking for independence, and a cancer diagnosis means social, emotional, and financial change. Often it means they must be more reliant on their parents or guardians in ways they feel is unfair or detrimental to their development. They know their health limits them in ways they did not expect.

In addition, several studies have shown that young adult cancer patients report a higher symptom burden than older adults, including more significant cancer pain through treatment and afterward. Pain and depression are linked, so it’s likely that as cancer pain intensifies depression, depression exacerbates physical pain. Cancer survivors are often left with a fear of recurrence, a changed relationship with their bodies, and chronic health issues. Unfortunately, these are challenges their peers are most likely not facing.

Emotional concerns of treatment can also have a lasting impact. Teens are already stressing about their bodies due to puberty; it’s not surprising that cancer-related changes like hair loss, weight gain, or scars from cancer treatment can increase these negative feelings. This can cause concerns about their future. Teens that are unhappy with changes in their bodies may worry about their ability to have romantic relationships or even friendships. That fear might be compounded by cancer or treatment’s effect on fertility.

No teen wants to feel isolated or alone. But teens going through cancer treatment often are. Teens undergoing chemo face friends treating them differently, or experience fears talking to their friends about what’s happening to them. Today teens are swayed by peer pressure and outside opinions and typically haven’t found enough security in their identity to ignore the views of their peers. Social media can be a great place to build community or a terrible site for bullying, where unrealistic ideas of lifestyles are always one click away. Teens may also face overwhelming academic pressures, especially when undergoing treatment that keeps them from the classroom or hours required to study and do homework. They want to maintain relationships intact and keep up in school to remain with their peers. Unfortunately, this is not always possible and leads to depression and mental health concerns.

PARENTS OF TEEN CANCER PATIENTS BEWARE OF…

Adolescents face a unique challenge in that health decisions often go through their parents. Sometimes parents delay treatment for mental health issues because they cannot believe that their child could be diagnosed with a mental illness. For example, parents of teen cancer patients often think these mental health issues will end when cancer treatments end. They, therefore, choose to focus on the cancer treatments over their teen’s mental health. Parents should know that if their teen is struggling with their mental health, it is not because the teen or parent has done anything wrong or that it is purely cancer treatment-related and will go away. They should also know that delaying mental health treatment can have severe repercussions on the teen’s wellbeing.

For the past few years, COVID has compounded the challenges of cancer treatment, recovery, and mental health concerns. Fear can be intensified in conjunction with cancer and Covid. Even healthy teens have faced new levels of isolation, depression, and unexpected change. Everyone with a teen in their lives should be knowledgeable about the mental health challenges they face and know how to help them.

The good news is that we’re more aware than ever of the declining state of teen mental health, and awareness leads to destigmatization and, hopefully, solutions. So while it’s terrible that this problem is growing, we can be hopeful that the response is growing along with it.

WHAT TO LOOK OUT FOR

Kids with cancer may have different indicators of mental illness, or usual indicators might be unreliable because they are also symptoms of cancer and treatment. Additionally, each mental illness has various indicators. Still, here are some signs to look out for.

Loss of interest in activities that they used to enjoy
Low energy
Difficulty sleeping or excessively sleeping
Spending more time alone and avoiding social activities
Excessively exercising, dieting, and/or binge eating
Self harm (e.g., burning or cutting their skin)
Crying easily or being unable to cry
Feeling hopeless; Thoughts of suicide
Unwanted recall of painful aspects of cancer
Feeling extremely fearful, upset, or angry when thinking about cancer
Physical reactions (rapid heart rate, shortness of breath, nausea) when thinking about cancer
Avoiding healthcare visits; white coat syndrome (increase in blood pressure)
Refusing to talk about cancer

It’s also important to note that females, young adults with brain, spine cancer or requiring intrathecal chemo, and teens with prior trauma or other mental health issues are at higher risk.

HOW TO HELP YOUR TEEN?

The most important thing you can do is not uphold the stigma against talking about mental health or against seeking professional care when needed. Teens in your life need to know that you are a safe person to talk to and that you will connect them to professionals if required.

Increasing your mental health literacy is a great way to start. Improved mental health literacy, defined as the “knowledge and beliefs about mental disorders which aid their recognition, management or prevention,” has de-stigmatized mental illness and made teens more able and likely to seek help. This can start with you.

DURING TREATMENT

Make sure your teen’s doctors are monitoring their mental health as well as their physical health. If accessible, mental health screenings or check-ins with therapists could be key to identifying mental health issues. Additionally, ensure communication between your teen and their oncologist is strong. Some doctors are more comfortable working with adults or young children than teens, and your teen may feel out of place in a doctor’s office where the patients are doing most of the talking and discussions about treatment. Teens can also be more resistant to treatment than other groups. They, rightfully, want to have the same lives and opportunities as their peers and thus may not take treatment as seriously as is necessary.

Mental health is just as important as physical health. In fact, mental health has a significant impact on physical health. Cancer patients with depressive disorders have documented more prolonged hospital admissions and are less likely to follow prescribed treatment regimens. The mental effect of cancer on teens is life-changing and needs to be treated with the same importance as physical care.

Encourage your teen to spend time talking with peers and friends. Having a connection with old friends or support from a group of teens experiencing similar things can be invaluable. Then, connect them with a professional when more help is needed.

POST-TREATMENT

Watch your teen post-treatment when they have time to slow down and process what they’ve been through. They are likely to experience intense sadness, guilt, and/or relief.

Consider getting therapy yourself – you have lived through trauma too! It could be vital in maintaining a healthy relationship with your teen. Over-protection after cancer treatment can lead to extraordinary tension between parent and child.

Remember that there may have also been positive growth through all the difficulties of cancer. Some survivors and their families experience beneficial changes in relationships, personal growth, and understanding of what they value. It can be powerful to remember the growth experienced during trauma.

One of the reasons teens are most affected by mental health issues is that teens can be resistant to seeking help. In this period between childhood and adulthood, teens want to establish themselves as individuals and prove that they can live independent lives. The best thing you can do as a fellow teen is to practice seeking help and show your friends that you are someone they can come to for non-judgmental discussion. Having a strong, trusted support system is invaluable when someone is struggling with mental illness.

HELP TEENS WITH CANCER ON A LARGER SCALE

If your teen is in cancer remission, remember that this is something to celebrate! But don’t forget that the diagnosis and treatment’s mental effects can last long after treatment ends. Often it can show up in sleep disorders. It is not just Covid that causes mental illness. Cancer treatment and survival is a big cause and sleep or lackthereof is a significant indicator. It can feel scary that so many teens, particularly those that have already survived cancer, are diagnosed with mental illnesses. We all want teens to have fun, enjoy this unique time of life, and figure out who they are. But as awareness builds and stigma slowly dissipates, we can continue to put up a united front to help teens everywhere.

For instance, many community colleges and universities have programs like “Students with Disabilities.” Teenagers can resist this help because of the name and the stigma they see that goes along with it. However, these programs are not publically administered and under the average student’s radar. They give the cancer survivor many much-needed benefits, like early class selection/registration, note-takers, longer times on tests that no other students are even aware of, help with study methods, and more. We need to remove barriers to treatment. Unfortunately, we don’t have enough data to identify the best ways to help because people are just now studying teen-specific and general mental health problems. Many of us can only solve these problems by supporting charities that make help and solutions more accessible.

You can help directly by donating to Here to Serve. This organization works to remove some of the stressors that can lead to long-term mental health issues and to provide tangible support to eliminate challenges that can become unmanageable when dealing with poor mental health. One of the most essential factors in maintaining positive mental health is support. Join Here to Serve on our mission to support families on their cancer journey.

Sources/Find additional info about teens with cancer at:

CDC: https://www.cdc.gov/childrensmentalhealth/data.html
NCBI/NLM/NIH: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4518700/
US Department of Health and Human Services: https://opa.hhs.gov/adolescent-health/mental-health-adolescents#1
NIH: https://www.nimh.nih.gov/health/statistics/mental-illness
Science Direct: https://www.sciencedirect.com/science/article/pii/S1054139X20300331?casa_token=7oDXTrxCQIcAAAAA:GNzeRJMxl3kIbmzHAqHbKOVYTBFuEvCcyYC7R4BAamYZDKeb3ulH2zVswyEFAEl81Hn9XZrKrlE#bib12
https://www.sciencedirect.com/science/article/pii/S1054139X20300331?casa_token=7oDXTrxCQIcAAAAA:GNzeRJMxl3kIbmzHAqHbKOVYTBFuEvCcyYC7R4BAamYZDKeb3ulH2zVswyEFAEl81Hn9XZrKrlE
American Cancer Society: https://www.cancer.org/cancer/cancer-in-adolescents/special-issues.html
Children’s Oncology Group: http://www.survivorshipguidelines.org/pdf/2018/English%20Health%20Links/15_emotional_issues%20(secured).pdf
Penn Medicine: https://www.pennmedicine.org/updates/blogs/health-and-wellness/2017/may/teens-mental-health

By Kelly Markus

About The Author

Kelly Markus studied Film and Television and has spent time on sets in Los Angeles. Originally from the East Coast, she has moved back home. Since 2020, she has decided to refocus on writing. Having seen loved ones battle cancer, blogging for Here To Serve is close to her heart.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

The Impact of COVID-19 on Pediatric Cancer Patients

Support in Uncertain Times

While the Omicron variant has dominated COVID-19 coverage in the news for the past several months, there is not enough verified research on the impact it has had on children with cancer. Doctors are continuing to collect data and analyze the findings. COVID cases in children worldwide were studied during the first year of the pandemic revealing evidence about the impact on young cancer patients. A global research study published by the Lancet medical journal in the summer of 2021 and partially funded by the National Cancer Institute through the National Institutes of Health shed light on how the COVID-19 affected children with cancer.

Global Registry of Covid 19 in Childhood Cancer

The medical staff at St. Jude Children’s Research Hospital and the International Society of Pediatric Oncology (SIOP) conducted the study. One accomplishment was the creation of the Global Registry of COVID-19 in Childhood Cancer to track how the pandemic has impacted pediatric cancer patients. Between April 2020 and February 2021, researchers looked at 1,500 children under age 19 from over 45 countries. The research found that 20% of pediatric cancer patients developed severe infections that often required hospitalization. By comparison, 1 to 6% of children without cancer developed severe infections during this same period. Furthermore, hospitalization occurred in 65% of cancer patients who developed the infections, and unfortunately, 4% of these young patients died due to COVID-19.

The study concluded that children with cancer fare worse with COVID-19 than children without cancer. This conclusion may be an obvious summation, but the research’s importance was to take these findings and use the medical evidence to help make critical decisions to aid and prevent the virus from spreading in young cancer patients. The work of the researchers continues as they invite health care professionals worldwide to voluntarily report any patients with malignancy or prior hematopoietic stem cell transplant under the age of 19 at the time of a laboratory-confirmed SARS-CoV-2 infection. To learn more, visit the COVID-19 and Childhood Cancer Registry | St. Jude Global (stjude.org).

Ripple Effect of Pandemic on Cancer Treatment and Diagnosis

Research from St. Jude and SIOP also determined that cancer treatment was altered in those children who developed severe infections. Doctors modified cancer care in 56% of patients, with chemotherapy withheld in 45% of cases during Covid treatment. In the first year of the pandemic, other factors disrupted access to health care in some regions of the country.

A September 2020 article in Pediatric Blood & Cancer, a journal funded by the American Society of Pediatric Hematology/Oncology (ASPHO), uncovered disparities in the level of care provided to children when examining data on young patients in the Boston area. The discrepancies occurred despite the American Academy of Pediatrics and the Center for Disease Control (CDC) recommendations that in-person doctor visits and childhood vaccinations continue. Some primary care clinics reduced hours during the pandemic, offered only virtual visits, or in some cases had limited resources and staff.

Also, some parents were apprehensive about leaving their homes during the quarantine to go into doctor’s offices or medical centers and possibly be exposed to the virus. The ASPHO report uncovered the possibility that some pediatric cancer diagnoses may have been missed due to these factors during the first months of the pandemic. The researchers compared the March to May periods in 2019 versus 2020 and found a 56% decline in cancer diagnosis. The rise of COVID-19 did not cause cancer rates to go down, but issues with adequate healthcare may have played a role.

As of early February, there is some encouraging news that the overall number of Covid cases is declining, and hospitalization and death rates continue to go down. Covid continues to be a mild annoyance to the general population of Americans; mask mandates, supply chain issues impacting daily life, and longing for the days when things were “normal.” But what impact has COVID-19 had on one of our more vulnerable segments of society, pediatric cancer patients?

Addressing Critical Issues for Young Cancer Patients as Pandemic Rages Forward

As the COVID-19 pandemic moves into its third year, some uncertainties remain, especially as new variants emerge. But needs of young cancer patients are being met. The US Food & Drug Administration (FDA) focuses on issues faced by many cancer patients through their Oncology Center for Excellence (OCE). During these extended periods of supply chain issues where there are shortages in everything from lumber to cream cheese, the FDA focuses on preventing drug shortages. The “FDA is proactively monitoring the supply chain, and OCE will work closely with the Center for Drug Evaluation and Research to prevent or mitigate shortages of oncology drugs that are critical to the treatment of patients with cancer.”

In the past year, one crucial factor that has helped limit the number of hospitalization and deaths as the number of cases grows is the access to the Covid vaccines. Since vaccine approval in mid-2021, the CDC has provided valuable recommendations for young people under 19 years. And this information is most important for those who are moderately or severely immunocompromised. Cancer patients are among those who fall into this segment. The CDC recommends vaccinations and a booster dose, especially for patients undergoing chemotherapy due to weakened immune systems and increased chance of infections.

Current situation with Covid 19

According to the Centers for Disease Control (CDC), as of February 1, 2022, nearly 75 million Americans have gotten some variation of the SARS-CoV-2 (COVID-19) virus, a staggering number that seems almost unreal, especially given that 1/3 of those cases have occurred in just the past three months. Since the vaccines became widely available to most Americans in the Spring and Summer of 2021, the impact of the virus for most is less severe, even more so with a booster dose. Many people who test positive are surprised to learn they have the virus because they don’t “feel sick.” The vaccines do help to suppress the severity of the virus. The CDC also reports that unvaccinated adults have five times the risk of infection and more than 50 times the risk of COVID-19-associated death.

Currently, the CDC recommends everyone over the age of 5 get the vaccine. In January 2022, the FDA authorized the Pfizer COVID-19 vaccine for the third dose in some immunocompromised children aged 5-11. The information is continually updated, so it is beneficial to check the CDC’s website for the latest news. And if you have a child or loved one going through cancer treatment, please check with the child’s health care team before making any decisions related to the vaccine.

Here to Support in Uncertain Times

The pandemic has affected everyone in different ways. For some families, the pandemic has caused tragic loss of life and caused an emotional toll or financial hardship. For others, they have weathered the pandemic storm and gotten through it with minor issues. However, we choose to confront the virus, its control continues to touch us all. The pandemic will impact our lives for months and possibly years to come. The work of Here to Serve has continued throughout the past two years and will keep moving forward because, unfortunately, childhood cancer has not stopped during this time. We will continue to provide assistance and guidance for children and families going through the cancer fight.

By Chris Smith

About The Author

Chris Smith is a Here to Serve volunteer from the San Francisco Bay area who himself is a cancer survivor. He uses his professional experience as a technical writer to give back and provide clear and meaningful information for families with a child battling cancer.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Pediatric Cancer and the Caregiver

National Caregivers Day!

This year February 18th marks National Caregivers Day. Caregivers provide necessary assistance in everything from personal care to medical aid. The global pandemic has undoubtedly shined a light on caregivers worldwide. The truth is that caregivers were frequently overlooked, under-appreciated, underpaid, or not paid at all in the past. However, as the world realizes that the backbone of healing is a dedicated caregiver, we finally see genuine appreciation and support for these tireless and courageous individuals.

We want to celebrate the caregivers, usually moms and dads, who provide unwavering care for their cancer-stricken child. We see you! At Here to Serve, we understand firsthand the long hours, the sacrifices, the pain, and the heartache that come with being a caregiver for a child battling cancer. We also appreciate the desire and joy that comes from helping your child recover and the possibility to live a full life beyond disease.

Pediatric Cancer and the Caregiver

A diagnosis of pediatric cancer significantly impacts patients, their families, and, most importantly, the primary caregivers. With so much emphasis on the cancer patient’s needs, it’s essential not to forget caregivers are also going through the journey. According to research published in the Journal of Pediatric Oncology Nursing, all parents are intensely affected by a child’s cancer diagnosis regardless of their baseline functioning.

For these parents, pediatric cancer can cause significant but temporary distress, after which they usually adapt to a “new normal,” including the reality of the child’s cancer. However, a child’s cancer diagnosis can be significantly overwhelming in other subgroups of parents that may already have life stressors before diagnosis. In these families, the parents’ needs and distress may affect parenting, child well-being, and family functioning across the illness trajectory.

Overall, parents of children with cancer report significantly decreased health-related quality of life due to increased caregiving responsibilities and numerous stressors associated with their child’s illness. These stressors include financial burden, role strain, separations, interruptions in daily routines, poor sleep, and uncertainty regarding the child’s prognosis.

As a pediatric cancer caregiver, how can you prepare yourself for the road ahead? The best way to make the cancer journey load a little lighter physically and emotionally is to pre-plan when you can! Here are five strategies that may help you through those difficult days.

Understand your rights: Under the Family and Medical Leave Act, most employers are required to provide up to 12 weeks of unpaid, job-protected leave for family members who need time off to care for a loved one. For help with insurance rules and regulations, contact your insurance company. Many insurance companies will assign a case manager to address concerns, clarify benefits and suggest ways to obtain additional health-related services.

Empower your child: Teach your child to understand their diagnosis and be able to politely tell strangers, “Yes, I have cancer, but I don’t feel like talking about it right now.

Advocate for your child: Don’t hesitate to ask your care team for ways to make your child’s treatment more comfortable from home. Maybe there’s something simple you can do that you haven’t tried or thought of yet.

Have a hospital/clinic parking plan: Get directions ahead of time. Find your favorite parking garage and floor. Park there every time you go for appointments or hospital stays. That is one last thing to remember and lessen the stress when you know exactly where to go.

Plan for comfort and entertainment: Bring something from home to appointments that offer your child comfort. Always carry a phone charger and change of clothes. Keep an overnight bag in your car for your child and yourself. Don’t forget to bring something that will help you, the caregiver, relax.

Set up a support network: Friends and family want to help, but they may not know how to. This can be done through Here to Serve, a nonprofit that allows those who want to help the needed tools and resources all in one place. There is no need to go to multiple sites like Caringbridge, Meal Train, Go Fund Me, and others and splinter your efforts to so many platforms dealing with so many people causing you added stress. Here to Serve, a nonprofit, does it all! They help identify other charity support you may need but are not aware of. They set up microsites to easily coordinate friends and family to bring meals, pick up kids, get dry cleaning, organize housekeeping, secure financial support, keep friends and family updated, and so much more! So don’t feel shy; ask Here To Serve to set this up for you!

Help for Pediatric Cancer Patient Caregivers

Professional caregivers get more respite and rest time than parents who function as caregivers for their sick children. Parents and families flung into the role of full-time caregivers know there are no long breaks, vacations, or days off. Understandably, you want to exhaust every ounce of energy within you for your child. But, alas, you can’t always be at your best if your tank is empty. So it’s okay and necessary to incorporate self-care while caring for others.

Taking good care of yourself is an integral part of being a caregiver. Self-care can improve your quality of life and help you be better equipped to handle your parenting responsibilities. Here are three essential rules for taking care of yourself as you care for your child.

Rule #1: Take care of yourself. It can be easy to forget about your own needs as a parent and caregiver. Remember that to be there for your child; you need to take care of your own physical and emotional needs. Continue to be aware of your own check-ups, screenings, and medications. Take a few moments for yourself each day to do something enjoyable or relaxing, even if it’s just taking a walk around the block. Find some consistency within your routine, no matter how minor. Give yourself credit for all you do as a parent and/or caregiver, and find ways to reward yourself for your hard work. By caring for yourself, you will also be modeling healthy behavior for your child.

Rule #2: Acknowledge your feelings! When a child is diagnosed with cancer, it is common for parents to experience many emotions, including shock, anger, disbelief, sadness, fear, and guilt. Be honest about your feelings and share your feelings with someone you trust. Find ways to express your feelings through writing, art, or physical activity.

Rule #3: Get individual professional help for yourself sooner than later. Over the last decade, research into caregiver mental health and outcomes has led to a welcomed increase in resources to support caregivers in all aspects of their journey. Utilize these resources as much as you can. Many programs are specific to the type of disease or illness you are caring for and can make a massive difference in your well-being. For example, Here to Serve cares for the caregiver of pediatric cancer patients physically, mentally, emotionally, and financially. Get help from them so you can take some time to care for yourself. They also help you uncover additional caregiver resources. Here are just a few other resources for cancer caregivers:

At Here to Serve, we understand the importance of supporting children with cancer and caregivers helping navigate their journey upon diagnosis. Our team can provide resources, guidance, and hands-on support. We assist with everyday tasks including but not limited to meals, laundry, communication with friends and loved ones, housekeeping, and more while giving hope in a time of uncertainty. Reach out for our help right at diagnosis. We will be Here to Serve you through this unimaginable journey you neither asked for nor imagined you would have to take!

By Sameera Rangwala

About The Authur

Sameera Rangwala spent 10 years in the biotech industry. As a scientist and research professional, she uses her skills to blog and provide words of support to the cancer community.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

6 Valentine’s Day Activities for Pediatric Cancer Families

Valentine’s Day for Families Dealing with Cancer

Sharing Love on Feburary 14th

Every holiday will look different when a family has a child or parent with cancer. This compounds by the continuing effects of the COVID-19 pandemic. The next holiday to celebrate amidst these challenges is Valentine’s Day on February 14th.

It’s easy to understand how a child might be disappointed to miss out on typical celebrations at school. However, with the continuing Covid-19 pandemic constantly changing what’s deemed “safe,” your sick child might not be the only one away from their classroom this February 14th. So this year, activities like sharing Valentine’s in class might have to be put on hold. In addition, typical Valentine’s activities for adults, like date nights, might be a health risk. Still, holidays allow us to celebrate each other and recognize the blessing of being together.

The challenges we all face this year give more opportunity for everyone to honor the love between parent and child.

How to make Valentine’s Day special

How can a family battling cancer make Valentine’s Day special during such a difficult time? The best thing to do is to focus on love. Instead of focusing on making valentines for classmates, help your child make valentines for family members and/or friends who have joined you in this cancer journey and shown their love in numerous ways.

This Valentine’s Day can remind each family member of the love that carries you through the most difficult days. Whether it’s a holiday or not, when a member of the family has cancer, the primary focus of the family’s resources and energy will always be helping the sick family member get better. You can celebrate Valentine’s Day by giving back the love that was shown to you and your child. Whatever is fun and meaningful for your family is perfect. Below are 6 activities to celebrate love with your family.

Make Cards

Making cards is a classic Valentine’s activity and can be as simple or elaborate as you want. It’s an excellent opportunity to remind your child they are loved and for them to express their love for you, family, and friends. You can mail the cards made or photograph them and post them on a friend or loved one’s social media page. That way, both you and your child can hold onto the cards as a permanent reminder of their sentiments of love. While you make the cards, talk about how much you love each other, and teach your child about the beauty of having a day each year to celebrate love.

While the scissors and paper are out, maybe cut out some hearts or flowers to decorate your house and bring joy to your home or hospital room.

2. Bake Heart Cookies

If you are at home and your child is well enough, spend time together, make something, and have a sweet treat. Connecting through a family recipe can be a great way to share love, but if parents or kids aren’t up for making something from scratch, tons of ready-made dough taste just as good! If your child is not up for cooking, family favorites are just as special if they’re store-bought! Maybe try adding unique ingredients like marshmallows or pretzels to a ready-made dough or decorate store-bought cookies with sprinkles or icing.

Working together to make something beautiful, comforting, and yummy will create memories both child and parent can hold forever.

3. Paint Friendship Rocks

It is as easy as finding a rock, painting it, and planting it somewhere for someone else to find. Acrylic paint seems to work best. Just remember to seal the paint to the rock — there are sealing sprays available at craft stores — to keep the paint from bleeding from the rock into the environment. As an idea, paint a heart body on the rock. Use a hairdryer to dry the paint. Once the heart is dry, draw arms, legs, and a face. Write a meaningful message on the backside like: Let it Go, You’re Worth it, You Are Loved, Dream, Love, Relax. Now go for a walk and hide them around your yard or neighborhood. The rocks are put out there as gifts. Let them go and be a gift to make someone’s Day.

4. Make a Scrapbook

You can do many low-stress activities as a family to document love and make this day special. Share favorite songs about love, paint each other’s nails, or go through your photos together and instead of letting them get lost in your cell phone, print them out and make a memory book together. Have your child share a memory of the photo and make a caption. Put lots of hearts around the photos and bring the love as you collect your memories in a scrapbook. The only thing that matters is that you spend time together, celebrating your love. Remember, nothing is more powerful than the love shared between parent and child.

5. Rest

Valentine’s Day is the perfect opportunity to spend focused family time. Just taking a moment to watch a favorite movie, maybe one that celebrates love, and have your child’s favorite snacks. You can also read a Valentine’s themed book and spend all Day together in comfy pajamas. Play games that unite everyone by participating in one activity. Do whatever makes your family feel connected, loved, and happy.

6. Share Love

If you want to extend your love beyond your family, a great way to start is to share our mission with someone you know who has a child diagnosed with cancer. When other organizations focus on raising money for research and treatment, Here to Serve remembers that families on a cancer journey need assistance with everyday tasks like laundry, meals, funds, and special events such as holiday preparation and gifts, and much more!

Here to Serve provides countless services to assist families on their cancer journey. If you’re looking for more personal ways to help, consider volunteering or donating to help families on a journey they never expected to take with their child!

Happy Valentine’s Day from Here to Serve!

By Kelly Markus

About the Author

Kelly studied Film and Television and has spent time on sets in Los Angeles. Originally from the East Coast, she has moved back home. Since 2020, she has decided to refocus on writing. Having seen loved ones battle cancer, blogging for Here To Serve is close to her heart.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

National Cancer Prevention Month

Risks Associated with Cancer

Cancer is difficult to deal with for anybody, especially parents who have a child battling cancer. No parent wants to hear their child has cancer. Here to Serve provides support to parents through the difficult challenges of childhood cancer. During National Cancer Prevention Month, we are happy to share our knowledge of cancer prevention.

The devastating impact of childhood cancer is significant. Acute Lymphocytic Leukemia is the leading cause of cancer among children under the age of 15. Other pediatric cancers include: Neuroblastoma, Brain Tumors, Wilms Tumor, and Lymphoma. Many parents ask themselves how this could have happened to their child and they are looking for answers.

An overview of various studies to investigate the cause of childhood leukemia published in the Journal of the Archives of Medical Research in 2016 found that: childhood cancers are likely caused by environmental and genetic factors. There is strong evidence that radiation exposure by mother and father can impact a child developing cancer. Link to article: Environmental exposure and risk of childhood leukemia.

According to Schüz, Joachim, and Friederike Erdmann of the International Agency for Research on Cancer and the Danish Cancer Society Research Center, there is also moderate association with the geographical location to radon. Other clear risk factors are genetic anomalies such as Down’s Syndrome.

Immune System

The research referenced above “Environmental Exposure and Risk of Childhood Leukemia,” reveals the quality of the immune system has shown to be a convincing cause of childhood leukemia. In fact, lack of exposure to common childhood infections appears to be a risk factor as the immune system is not strengthened early on and is overburdened later in life (7).

The potential exposures to changes in the chromosomes, the reproductive cycle, and fertilization are of greater significance, particularly damage to the oocytes and sperm. The chromosomal damages can come from mothers, fathers, and even grandparents who pass on defective chromosomes.

The Role of Gluten and Cancer Risk

While there is some evidence for prenatal nutrition and breastfeeding, it has not been found to be statistically significant thus far. According to the American Cancer Society,
“In people with celiac disease, gluten triggers an immune response that damages the lining of the small intestine and could increase the risk of cancer.” In addition, some people experience gluten sensitivity without overt celiac disease. In these people, gluten may contribute to inflammation in the intestines, potentially increasing the risk of gastrointestinal cancers. However, this possible link is not well-proven.”

“For people without celiac disease, there is no evidence that consuming a gluten-free diet is linked with a lower cancer risk, and many studies suggest that consuming whole grains, including those containing gluten, probably reduces the risk of colon cancer.”

The Role of Nutrition and the Immune System:
Nutrition and Phytonutrients

Humans have been evolving and thriving for centuries. The human body is amazingly good at healing itself; the synergy between humans and the earth has allowed for beautiful synchrony with natural vegetation. Fruits and vegetables contain micronutrients that keep the human body in a state of optimal health.

The extensive array of colorful fruits and vegetables available contains many phytochemicals known as phytonutrients. There has been considerable research on the benefits of phytonutrients and how they support good health and an excellent immune system.

Our bodies have a complex system of cells. Cellular growth and death happen daily. Our immune system recognizes damaged cells or foreign invader cells and eliminates them. We need to fight off the invaders by providing the proper nutrition for optimal cellular function. Studies have shown that the phytonutrients in the colorful fruits and vegetables of the Mediterranean diet have anti-cancer properties

In the Journal of Nutrition, an abstract “Potential Synergy of Phytochemicals in Cancer Prevention,” https://academic.oup.com/jn/article/134/12/3479S/4688708 Rui Hai Lu shares, “Epidemiological studies have consistently shown that regular consumption of fruits and vegetables is strongly associated with reduced risk of developing chronic diseases, such as cancer and cardiovascular disease.”

Sadly, the western diet, which consists of fast and easy processed foods, has a detrimental impact on the increasing cancer rates worldwide. The World Research Cancer Fund provides statistics about many aspects of cancer worldwide. One of our blog posts about the benefits of phytonutrients shares easy ways to add more colorful fruits and vegetables into your everyday lifestyle.

Simple Cancer Prevention Strategies

Avoid
• Tobacco
• Excessive Alcohol Consumption
• Processed Foods
• High Fructose Corn Syrup
• Hydrogenated Oils

Increase
• Exercise
• Fruits and Vegetable Consumption
• Stress Reduction
• Meditation

Check out our blog on meditation during cancer treatment for tips on building a daily meditation practice.

Exercise is effective in cancer prevention. According to the American Cancer Society (ACS), the ideal amount of exercise for adults is about five hours a week of combined moderate and vigorous activity. ACS has provided guidelines for diet and physical activity. At least an hour of moderate or vigorous activity daily is recommended for children and teens. Sedentary activities in front of screens should be limited.

Here to Serve also has a blog about exercise during childhood cancer. It can be tough to find time to exercise with a busy lifestyle, especially when you are caregiving or are a patient and can’t find the energy you once had.

A simple walk around the neighborhood can be a challenge at times. Consider a stationary bike that folds up and fits in a closet like this comfortable Progear 225 Foldable Magnetic Upright Bike.

There are multiple benefits of exercise, and one great benefit is a healthy coping mechanism for stress.

Stress Management Helps Prevent Cancer

The most effective way to decrease stress is not overloading yourself with too many tasks. Knowing when to say no and not accept more than you can handle is an important first step in stress reduction. This is one way Here to Serve is so helpful for families coping with the burdens of childhood cancer.

The National Cancer Institute points out that people who experience long-term (I.e., chronic) stress can have a weakened immune system leaving them more prone to viral infections. A strong immune system is critical for good health and cancer prevention. Conversely, a weakened immune system from long-term stress and the typical Western diet is a recipe for disaster.

This leaves our soldiers less able to fight off damaged cells and invaders! So, in the spirit of National Cancer Awareness month, let’s commit to supporting our immune soldiers who protect us and make better lifestyle choices for healthy living!

As always, Here to Serve is here to support families dealing with pediatric cancer. We provide education through our blogs about childhood cancer, stress reduction, and more. Here to Serve provides tangible help and support for parents battling alongside a child or young spouse with cancer. If you or someone you know needs our help, fill out this form, and we will contact them. If you wish to volunteer your time and talents, please reach out, or if you prefer, you can also donate to those in need.

By Amanda Enciso

About The Author

Amanda Enciso is a cancer survivor from the Los Angeles area. She volunteers knowing what families endure during the cancer journey and after, as she battles GVHD resulting from her transplant. While going to school full-time to get a degree in English to start a new career path in life, Amanda finds time to write blogs for Here to Serve.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Works Cited

American Cancer Society, “Risk Factors and Causes of Childhood Cancer.”
(2019). https://www.cancer.org/content/dam/CRC/PDF/Public/9180.00.pdf

American Cancer Society”, American Cancer Society Guideline for Diet and Physical Activity” (2020). https://www.cancer.org/content/dam/CRC/PDF/Public/6753.00.pdf]

Augimeri, Giuseppina, and Daniela Bonofiglio. “The Mediterranean Diet as a Source of Natural Compounds: Does It Represent a Protective Choice against Cancer?.” Pharmaceuticals 14.9 (2021): 920. https://pubmed.ncbi.nlm.nih.gov/34577620/

Liu, Rui Hai. “Potential synergy of phytochemicals in cancer prevention mechanism of action.” The Journal of nutrition134.12 (2004): 3479S-3485S. https://academic.oup.com/jn/article/134/12/3479S/4688708?login=true

Schüz, Joachim, and Friederike Erdmann. “Environmental exposure and risk of childhood leukemia: an overview.” Archives of medical research 47.8 (2016): 607-614. Environmental exposure and risk of childhood leukemia

Thomas, Robert, et al. “Phytochemicals in cancer prevention and management.” British Journal of Medical Practitioners 8.2 (2015): 1-8. https://www.pomi-t.co.uk/Polyphenol-and-Cancer-Review.pdf

2022 National Blood Crisis!

January is National Blood Donor Month

For the past 50 years, January has been recognized as National Blood Donor Month to remind others about the life-saving impact of blood and platelet donors. However, this year, The American Red Cross has declared a “national blood crisis” as the US faces its worst blood shortage in over a decade, predominantly due to a drop in blood drives due to the Covid-19 pandemic. While we continue the fight against infectious mutating viruses, our national blood supply is dwindling even lower. The most vulnerable and at-risk citizens, including pediatric cancer patients, are in dire need of blood donation reserves to ensure future survival. The dangerously low blood supply levels have forced some hospitals to defer patients from major surgery, including organ transplants. As we celebrate and honor current and hopefully future blood donors, it is also vital to acknowledge the critical blood need we face in 2022 and its implications on childhood cancer.

Pediatric Cancer Patients and Blood Donations

The American Cancer Society reports that in 2022, an estimated 10,470 children will be diagnosed with cancer, and 1,050 will die from the disease. Leukemia (cancer of the early blood-forming cells) remains the most common childhood cancer, accounting for 28% of all cancers in children. Childhood cancer patients may need blood products regularly during chemotherapy, surgery, or treatment for complications. Cancer and cancer treatments can put patients at risk for low red blood cell and platelet counts. Some types of chemotherapy can damage bone marrow, lowering the production of red blood cells and platelets. Cancers such as leukemia and lymphoma attack the bone marrow as well. Blood and platelet transfusions can enable patients to receive necessary treatments to fight and survive cancer. Blood donations have the potential and power to drastically improve the outcome of a child’s cancer treatment journey!

Impact of Blood Shortage on Pediatric Cancer

As a result of the blood shortage, the Red Cross, which supplies 40% of the country’s blood supply, has limited blood product distributions to hospitals. The recent decline in donations has placed a sudden burden on blood banks, resulting in a limited ability to adequately replenish the nation’s blood supply. As a result, blood organizations are growing concerned that they may not meet their patients’ needs. The shortage affects individuals who need surgery, accident trauma victims, and patients fighting cancer. As commonly prescribed by their specialists, pediatric cancer patients often require intensive chemotherapy and significant abdominal surgeries to cure aggressive cancers. These life-saving surgical procedures are often all-day operations involving substantial blood loss, so patients frequently require multiple blood and platelet transfusions. In the current blood shortage crisis, hospitals may not receive one in four blood products they need. Doctors have been forced to make difficult decisions about who receives blood transfusions and who will be required to wait until more blood products become available. The complicated treatments needed to cure young cancer patients are only possible with a regular and robust blood supply. Therefore, it is essential to consider donating blood so that no child with cancer has to have their curative treatment altered or delayed due to the inadequate supply of blood products.

PLEASE DONATE!

The American Red Cross has urged donors of all blood types, particularly Type O (universal donor), to make appointments to donate. Donating blood is simple but can make a critical difference in a child’s life with cancer. The donation process only takes about an hour from when you arrive until you leave. In most states, donors must be age 17 or older, and some states allow donation by 16-year-olds with a signed parental consent form. Donors must weigh at least 110 pounds and be in good health. The more you give, the more lives you potentially save! However, you must wait for at least eight weeks (56 days) between donations of whole blood and 16 weeks (112 days) between Power Red donations. Whole blood donors can donate up to 6 times a year, and platelet apheresis donors may give up to 24 times per year every seven days.

To find a blood donation center near you, visit the American Red Cross appointment finder at: https://www.redcross.org/give-blood.html

In addition, please get in touch with your local hospitals and clinics that may offer a unique designated donor program that allows your blood donation to be directed to a specific child in need. Each unit of blood is tested and, if accepted and compatible, will be available for the particular child. No blood is ever wasted, and if the donation is not compatible or the child does not need the blood at the time, it will be released to another child in need.

Here to Serve Helps!

In 2022, we are hopeful for the future as we provide valuable aid and resources to families affected by childhood cancer. Even amid global pandemic delays, please know that Here To Serve will always strive to provide consistent support for families navigating the cancer diagnosis and treatment process. We won’t let a virus stop us! If you or anyone you know needs help managing the cancer journey and providing resources you may not be aware of, please fill out the GET HELP sheet on our website. Wishing you a healthy 2022, and please consider the message from National Blood Donors Month, and donate today!

By Sameera Rangwala

About the Author

Sameera spent 10 years in the biotech industry. As a scientist and research professional, she uses her skills to blog and provide words of support to the cancer community.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Food Insecurity’s Impact on the Cancer Journey

Food Insecurity's Impact on the Cancer Journey

Nutritional Importance and Food Resources

As we enter January, it’s incredible to think 2021 has ended; thankfully, for many of us! With the holiday sparkle and celebrations over, we look to renewed hope and dreams in 2022. Unfortunately, these recent holiday festivities were not the reality of many families who struggle with their child’s or young spouse’s cancer. 2022 continues to be stressful for these families. The holidays brought concerns about not obtaining adequate care due to holiday delays and closures and not seeing family because of travel expenses and cancer treatment restrictions. These concerns remain in 2022 for families battling cancer. Covid and its many variants persist with its danger and limitations. Importantly, not often mentioned are families with a child or young spouse fighting cancer not having enough food supply as they face 2022.

A child’s cancer diagnosis is likely the worst and most pivotal news for any parent and family. Instantaneously, families are rendered powerless to the one fundamental obligation of protecting their child. The grief felt by a parent in this situation can undoubtedly lead to unconscious side effects, such as negative thinking, distractedness, anxiety, and a decline in self-care. In turn, these side effects can significantly impact maintaining everyday parenting responsibilities. Unfortunately, food selection and availability are some of the many responsibilities that tend to be neglected, especially when resources are limited.

Stress and a Lack of Time Effect Focusing on Nutrition

Pediatric cancer patients require specialized nutritional changes in their diet almost immediately after diagnosis. The required intake of calories and reduction in certain foods to keep cancer-feeding hormones at bay are crucial in the recovery journey. However, it can be a challenge to prioritize food when you are trying to balance the high cost of cancer care while still maintaining your well-being to keep your job and maintain a household optimal for your child’s recovery. In addition, medical appointments and side effects of treatments can interfere with work and may result in lost income.

Parents can feel like the weight on their shoulders is maxed out both physically and emotionally, and choosing between a salad or pizza does not seem like the most vital need to fulfill. Research shows that depression and anxiety are associated with food insecurity, so, understandably, it would affect families who are already going through the difficulty of a cancer diagnosis. When parents are aware, it can be a frightening situation when your thought is on “what am I going to feed my sick child?” and “Will I have enough food to feed my family?”. In turn, food insecurity stress often takes over following a child’s cancer treatment.

Families must know the importance of nutrition during the cancer journey and ways to ask providers and local communities for assistance to find food. Having the best nutrition to bring about the best outcome for your child should not be a burden or struggle. The following will share the research and facts about food insecurity and its impacts on cancer and advice on finding food resources in your community.

Food Insecurity Facts that Matter

Almost one-third of families whose children are treated for cancer face food, housing, or energy insecurity, and one-quarter lose more than 40 percent of household income. Competition between food and medical care is likely exacerbated by a lack of insurance or inadequate medication coverage. Studies show that families without insurance or public insurance are more likely to be food insecure than families with private insurance. Research into understanding the relationship between poor health outcomes and food insecurity has driven organizations like the American Academy of Pediatrics (AARP) to advocate for regular screening of families with a cancer diagnosis for food insecurity. A screening tool called Hunger Vital Sign (HVS) was validated for pediatric patients to identify families with food insecurities. This tool evaluates families based on their responses to two important statements:

“Within the past 12 months, we worried whether our food would run out before we got money to buy more.”
“Within the past 12 months, the food we bought just didn’t last, and we didn’t have money to get more.”

If you answered yes to one or both of these statements, then it’s time to consider asking your health care team or local officials about reliable and consistent food sources in your community.

The Impact of Nutrition On The Cancer Journey

Good nutrition is important for a child, adolescent, or young adult with cancer. It helps them grow, repair tissues damaged by therapy, have less side effects of therapy and feel better. Nutritional needs of children differ with age, sex, body size, general state of health, and the type of cancer and treatment. Children with cancer often have poor appetites due to one or more of the following:

The hospital environment
Side effects of chemotherapy and/or radiation
Depression
Changes in the cells of the mouth that may alter the way food tastes
Side effects from medications
Inadequate absorption of calories, vomiting, and diarrhea

Poor nutrition contributes to poor growth. If a child with cancer maintains adequate nutrition, he or she may be more likely to:

Better tolerate chemotherapy or radiation and have fewer side effects
Have improved wound healing
Grow and develop
Maximize quality of life

Finding National and Local Food Resources

At Here to Serve, we strive to support families as they navigate all the technicalities of a pediatric cancer diagnosis. We understand wholeheartedly how overwhelming it can be to juggle the normalcies of everyday life along with medical treatment for your child. If you are struggling to provide sufficient healthy food to feed your family, please consider exploring the options below in your local state or county.

Supplemental Nutrition Assistance Program (SNAP): Federal nutrition program that helps millions of families with low income in the U.S. put food on the table. For more information on eligibility, please visit the USDA Food and Nutrition Services
WhyHunger Local Food Bank Finder: Helps find community-based organizations and emergency food providers. To find local food banks in your state, please visit the WhyHunger
Feeding America: Nationwide network of food banks secures and distributes 4.3 billion meals each year through food pantries and meal programs throughout the United States and leads the nation to engage in the fight against hunger. For more information on programs and location food banks, visit the Feeding America

If you or a friend or loved one has had a child recently diagnosed with cancer, please reach out to Here to Serve for help. Just click on the Get Help button. Here to Serve is here to help! We wish you and your family a healthy, prosperous, and safe holiday season!

By Sameera Rangwala

About The Author

Sameera Rangwala spent 10 years in the biotech industry. As a scientist and research professional, she uses her skills to blog and provide words of support to the cancer community.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Gratitude Beyond the Fog of a Cancer Journey

November is National Gratitude Month

As we approach another season of giving thanks amidst a dragging pandemic, there are ways to experience gratitude during the cancer journey that eases emotional trauma when practiced daily. This applies to both the child and parents. It is possible to practice gratitude with intent, even when it feels impossible.

Gratitude can feel unimaginable at the time of diagnosis when families are confronted with stress and the tremendous burden of understanding their child or young spouse’s cancer diagnosis and the treatment options. The long-term psychological effects of intensive cancer treatments in children have been studied since the 1980s. Some childhood cancer patients cope psychologically well with the experience, but many patients and families still report anxiety, depression, and post-traumatic stress. The good news is that research has been ongoing to determine the most successful coping mechanisms, mental health healing, and overall emotional recovery methods related to families managing cancer. One significant finding showed that families that incorporate gratitude intervention (practicing gratitude) into their healing/treatment journey ease emotional trauma when practiced daily.

National Gratitude Month

November is National Gratitude Month and reminds us to be thankful. Of course, practicing gratitude can be that much more difficult with the bombardment of images of friends and strangers living their perfectly healthy lives. It can be challenging to see through the fog, especially when trying to support your child through the rigors of cancer. But, as years of psychological-based research have proven, those practicing gratitude can genuinely pull through even the darkest of days.

Finding a sliver of gratitude with intent daily is the best way for me to rise above the distractions. Gratitude with intent. What does that mean? It means pushing the boundaries of your mental and physical state and purposely hijacking the “fear monkeys” replacing them with thankfulness. Cultivating gratitude amid crisis doesn’t just happen. You must seek it out. It requires you to be self-aware for even a few minutes with no distractions. Shifting to an attitude of gratitude can be the difference between surviving and truly thriving. Gratitude requires an appreciation for the little things, like having clean water, having the freedom to educate yourself, or even just having a few green trees around you. Eventually, you’ll find that gratitude requires less effort on your part and starts to become a subconscious recognition of all that is good in your life. You’ll begin to appreciate what you can do instead of what you can’t.

There are proven ways to practice gratitude even when you don’t have the strength or will to do it.

The Attitude of Gratitude Method

Cultivating the feeling of being grateful does not require you to be constantly in a state of happiness. The attitude that gratefulness can be small passing moments of contentment and appreciation. Be sure to take the pressure off yourself and know that it’s normal to be thankful for good things but still mourn tragic life events and illness. A little goes a long way.
One of the issues with digital overload has been the increase in self-comparison. Try to stop comparing your family to others. Remember, people, curate what they want us to see. The reality could be completely different. Take a few minutes to appreciate what you have in one day, one hour, or a few minutes. You can teach your mind to scan for the positive things in life automatically. Remove ranking yourself against others to create genuine gratitude that is not forced or driven by someone else’s haves and have nots.
Look for the little things to say “thank you” for instead of “I’m sorry” when things are out of your control.

The Generosity Method

There are times when helping someone else can fill the void of finding something to be grateful for. Showing appreciation for the people who choose you first, continuously checking in on you, and being by your side can help you feel good. This appreciation is gratitude with intent. There are several ways to express genuine appreciation to others:

Send a quick text message or email with a simple thank you to a friend or family member you may have neglected during the cancer journey.
A compliment to loved ones or even a stranger goes a long way and has the potential to change the whole trajectory of someone’s day positively. Your impact is something both of you can be thankful for.
Battling cancer opens your awareness to others on the same journey. Being an active listener in a distracted world can seem like an arduous task these days. Reconnect by disconnecting and actively listening, try not to interrupt, and respond with empathy. You will receive gratitude in return for just being a sounding board for someone else, possibly on the cancer journey.

The Method of Savoring

Intentional gratitude includes engaging all your senses to appreciate what you have right in front of you in the now. Savoring moments of delight and calmness amid a storm can be incrementally uplifting. It’s easier to savor in small doses, starting with small steps. Paying attention to surroundings outside of your everyday bubble can help. For example, eating slower and tasting every bite of your meal, or watching a hummingbird hover for a few seconds, or experiencing a magnificent sunrise or sunset. Noticing and appreciating the good in each day will impact your gratitude not just during the cancer journey but for life.

I hope these methods to practice gratitude with intent help you see that there is always something to be thankful for beyond the fog. Here to Serve is grateful to help families receive support during their journey to ease stress and lighten burdens. If you or someone you know has a child recently diagnosed with cancer, please tell them about Here to Serve. If you are inspired to donate to help us help those families, please follow this donation link. Finally, we wish you and your loved ones a very happy, healthy, and safe Thanksgiving!

“Is your glass half empty or half full?” asked the mole. “I think I’m grateful to have a glass,” said the boy.”
– Charlie Mackesy, Author of The Boy, the Mole, the Fox, and the Horse

By Sameera Rangwala

Disclaimer: All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Importance of Funding the Cancer Journey

Emotional and Financial Support

For more than two decades, the pediatric cancer survival rate has increased dramatically. Over 80% of children with cancer survive over 5+ years. Technological advances in medicine now give parents hope that their young children will beat cancer. But this optimism does come at a price, and most often, it is not only long-term medical issues from treatment, but a large financial one that can affect families long after treatment ends. We provide support for families battling cancer. Receiving the diagnosis that your child has cancer is news no parent should ever have to hear. Having to also worry and struggle under the strain of a health care system that treats the physical disease of cancer but inflicts fiscal and emotional wounds should not be another burden for parents.

Finding the best treatment for your child, devoting your time and energy as a caregiver are only part of the responsibilities for parents during this time; funding the cancer journey is also a large part of the load. Coordinated support from family, friends and their greater community is needed to avoid the high rates of secondary illness, financial strain, or collapse, and/or the jeopardy of lost time, pay and productivity at work. As health care costs and insurance deductibles rise each year, and the cost-of-living increases, it is an economic reality that will cause parents to financially struggle while they watch cancer take a toll on their child.

Cost of Cancer to a Family

In a 2018 report conducted in part by the National Institute of Environmental Health Sciences, the average medical cost to fund one child with cancer was $833,000; this includes lost parental wages due to cutting back work hours or, in some cases, quitting a job. Costs can range from a $40,000 a day hospital stay to a $5.00 fee to park in a medical center lot. Big or small, the cost of cancer has a tremendous effect on families, some struggling financially even before the cancer diagnosis. 2020 census statistics show that 91% of Americans had health insurance coverage for all or some of 2020, but that is still not enough to cover all costs for many families.

The financial obligations go beyond chemotherapy treatments or prescription medication. The daily expenses of basic needs like food and shelter can force families to drain their life savings to survive. But there is hope. Just as advances in science have increased the chances of surviving cancer, advances made during the 21st century have put computers in the palm of our hands and opened up the world to finding information in seconds.

Resources Are Available: Support for families battling cancer

If you are reading this blog post, chances are you are looking for resources to help you through the cancer journey of your child or spouse. Fortunately, there are organizations across the country to help go through the trauma of childhood cancer. Many are generously providing financial aid to low-income families. However, the resources are splintered and sometimes hard to find. Apply for as little as $200 can involve lots of paperwork. Often too daunting to do. It takes a lot of time and energy to find resources when there are so many other more important issues vying for your attention. Help for not only finances but managing the logistics of the journey are now found in one place, Here to Serve.

To be clear, financial statements and applications do not show the actual reality of what families are dealing with on a day-to-day basis. As the cancer journey starts, many typical routines will change very quickly. A parent may have to cut work hours to part-time to be full-time caregivers; once the obligations become too great, they may need to take unpaid family leave or even quit working. As many as 25% of families will lose 40% of their household income throughout their child’s cancer treatment. At Here to Serve, we offer support to families who usually do not qualify for aid because household income is considered too high.

Founded by Katie Quintas and her husband Silvio, part of the mission of Here to Serve is to prevent families from going into bankruptcy to care for their child during the cancer journey. The cancer diagnosis should not force parents or guardians to lose their job, health, and emotional well-being during their cancer journey or because of it. For over ten years, Katie and the Here to Serve staff and volunteers have kept the promise to provide quality resources and assistance to families across the country who do not qualify for government assistance. In 2020 with the onset of the Covid-19 pandemic, this promise became increasingly challenging to keep. Still, as our nation and the world emerge from this historic tragedy, the team at Here to Serve continues this often never-ceasing mission to help the children and families affected by cancer.

Here to Serve Is a Great Resource!

Please take the time to view the Here to Serve webpage and learn more about the services offered. We provide services to support families battling cancer. Our Care Community volunteers can assist with the following:

Meals
Childcare
Petcare
Gift Cards
Household chores and cleaning services
Family Updates
Fundraising
Holiday preparation and decorations

There are many other services and resources provided free of charge to lessen the worries of daily life. Financial assistance and emotional support are provided so that families do not go through the cancer journey alone.

By Chris Smith

About the Author

Chris Smith is a Here to Serve volunteer from the San Francisco Bay area who himself is a cancer survivor. He uses his professional experience as a technical writer to give back and provide clear and meaningful information for families with a child battling cancer.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

Emotional Wellness Month – Positive Mental Health During Cancer Treatment

Emotional Wellness Month

Positive Mental Health During Cancer Treatment

The National Center for Emotional Wellness defines emotional wellness as “an awareness, understanding, and acceptance of your emotions, and your ability to manage effectively through challenges and change.” October is Emotional Wellness Month in the United States. As we enter the cooling months of the Autumn season, we focus on how parents can help their children cope with the emotional roller coaster that comes with cancer treatment. For an average American, on any given day, life can be full of stressful events. Hectic schedules, a flat tire on the way to an important event, spilling coffee on a brand-new iPhone. Everyday life can bring stress and anxiety. Minor annoyances are nothing compared to receiving the news that your young child has cancer. How children cope with this news and how parents and guardians help them process this diagnosis can profoundly affect how they get through their cancer journey.

Finding Emotional Stability During Chaotic Times

The organization Mental Health America estimates that over 40 million Americans suffer from at least one mental health problem. Emotional well-being can affect overall health. Mental stress can impact physical health and weaken the immune system, so providing emotional support for vulnerable children battling cancer is crucial. Young cancer patients will face many obstacles during treatment, some will adapt, but others will need help to cope with cognitive, behavioral, and social issues.

There are many challenges during cancer treatment that will have a damaging impact on mental health. Children cope with physical and emotional development on an average day; during cancer treatment, these brave kids survive the often painful physical symptoms of both the disease and treatment side effects. Constant worry about their future, the day-to-day uncertainty that comes with changing daily routine, and constantly being separated from family and friends during treatment. As their tiny, fragile bodies go through trauma, so will their mental health. Negative feelings lead to stress and sadness. Parents can feel helpless as to how they can help. Just being there is a critical way to help their child feel safe and secure, but that may not be enough. So parents should not be afraid to reach out to their care team for emotional support.

Reaching Out for Professional Support

Most pediatric care teams consist of doctors and nurses and include psychological and behavioral health resources. Using these services can help diagnose if more serious mental health issues are developing due to cancer or medication. Some psychiatrists specialize in balancing and stabilizing the brain chemistry of children experiencing side effects from cancer drugs. Having mental health care professionals on your team can benefit emotional wellness by giving your child a safe, non-judgmental place to talk about the issues causing fear and stress. Seek them out! They can also offer encouragement and drug therapy during a difficult time, especially if high-dose steroids are causing behavioral and psychological issues.

Social Support

If you don’t believe a mental health professional is required, other people in their life can help provide emotional stability. Maintaining relationships with friends and family is essential during cancer treatment. These relationships help make a kid feel normal during a frightening and confusing time. Keeping in touch during an ever-changing pandemic can be difficult. In-person contact might not be possible at times, but a Zoom chat, a phone call, or even cards and letters can bring a smile to a child’s face.

During the cancer journey, many people will come into your life. Some of those will be families going through the same type of fight. Knowing that others are sharing the same worries and feelings as your child can be a positive thing in a strange way. Those children know what your child is going through, and support from a peer can help to bring emotional steadiness in your child’s life. Your child’s care team may also provide more resources about support groups available at your hospital.

Art Therapy

Fun and creative activities can foster emotional wellness. One method parents can use is art therapy to reduce anxiety and depression. Art is a creative expression for children of any age, and through exercises such as drawing or painting, children can enhance physical and emotional well-being. There are many benefits of this type of therapy, from improving motor skills and reducing stress to increasing self-esteem and even helping to provide a distraction during long days in the hospital.

Here for Emotional Support

Emotional wellness may not be a top priority during a cancer battle, but it is essential to remember that mental health is a significant part of living well. Feelings of sadness, anger, hopelessness, or other negative emotions can have an impact on your child’s immune system and physical well-being during and after treatment. Remember, as parents, you are the beacon of hope and stability your child is looking to for help. If you feel overwhelmed, do not go through this alone, there is assistance and hope available. Here to Serve is one such organization ready to step in and provide support and resources to take some of the burdens off your mind, body, and spirit.

About The Author

Chris Smith is a Here to Serve volunteer from the San Francisco Bay area who himself is a cancer survivor. He uses his professional experience as a technical writer to give back and provide clear and meaningful information for families with a child battling cancer.

All information on this blog is for informational and educational purposes only. Always consult a medical provider in your particular area of need before making significant changes in your medical decisions or lifestyle.

How Does Cancer Affect Mental Health for Cancer Patients?

Cancer DOES Affect Mental Health

Before and After Treatment

Mental Health Issues in Cancer Patients

Does Cancer Cause Mental Health Issues?

How Many Cancer Patients Suffer from Mental Illness?

How Does Cancer Affect You Emotionally?

Emotional Distress

What is Emotional Distress?

Emotional Distress Symptoms

Depression

What is Depression?

Depression Symptoms

Anxiety

What is Anxiety?

What causes Anxiety?

Types of Anxiety

Acute Anxiety

Acute Anxiety Symptoms

Chronic Anxiety

Chronic Anxiety Symptoms

Coping with Pediatric Cancer

Talk Therapy

Support Groups & Communities

Medication

Gray May – Brain Tumor Awareness Month

Gray May - Brain Tumor Awareness Month

Supporting the Brain Tumor Community

What does “go gray in May” mean?

When is Brain Tumor Awareness month?

How many people have brain cancer in the US?

Childhood brain cancer statistics

What are the most common pediatric brain tumors?

Causes of brain cancer

Brain Tumor Symptoms in Kids

Treatment Options for Pediatric Brain Tumors

Here to Serve can Provide Guidance

Here to Serve can help

National Nurses Week 2022: The Backbone of Healthcare

National Nurses Week 2022: The Backbone of Healthcare

May 6-12

How Can We Appreciate Our Nurse?<img decoding="async" src="https://i0.wp.com/heretoserve.org/wp-content/uploads/2022/04/nurse_giving_shot.png?resize=277%2C184&#038;ssl=1" alt="Nurse giving a young boy a shot" width="277" height="184" class=" wp-image-4562 alignright" data-recalc-dims="1" />

About the Author

Celebration Ideas for Moms of Cancer Kids

Celebration Ideas for Moms of Cancer Kids

Mother's Day 2022

Help Her Feel Her Best

Give Her Space to Accept Gifts

About the Author

Coping with Stress After a Child’s Cancer Diagnosis – National Stress Awareness Month

Coping with Stress After a Child's Cancer Diagnosis

National Stress Awareness Month

What is Stress?<img decoding="async" src="https://i0.wp.com/heretoserve.org/wp-content/uploads/2022/04/brain_activity.png?resize=250%2C216&#038;ssl=1" alt="Scan of hyperactive brain" width="250" height="216" class=" wp-image-4500 alignright" data-recalc-dims="1" />

Here are some physical signs that might indicate you are in stress mode:

Emotional and Mental Signs of Stress Include:

Statistics

Get Help Through the Cancer Journey

About the Author

Recognizing a Nation of Volunteers – National Volunteer Week April 17-April 23

Recognizing a Nation of Volunteers

National Volunteer Week April 17-April 23

The Emergence of Virtual Volunteering

Volunteering at Here To Serve this National Volunteer week

About the Author

April is National Donate Life Month!

April is National Donate Life Month!

The life-saving power of organ donation

Stem Cell and Bone Marrow Transplants

Donate Life Living Donor Day – April 6th

National Donate Life Blue & Green Spirit Week April 16-22nd

National Donate Life Blue & Green Day – April 22nd

Other Ways to Help

About the Author

It’s 2022; Why Do Demographic Disparities in Pediatric Cancer Still Exist in the United States?

It's 2022; Why Do Demographic Disparities in Pediatric Cancer Still Exist in the United States?

National Minority Cancer Awareness

Need for Racially Diverse Medicine in Childhood Cancer Care

Is Laughter the Best Medicine? Using Humor to Heal

Is Laughter the Best Medicine?

Using Humor to Heal

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What is Stress?