This online resource takes the confusion out of healthcare reform legislation and improves your understanding of the benefits you will experience as a result of the Patient Protection and Affordable Care Act. Features include a timeline of implementation, interactive blog, helpful resources and informative media articles.
Legal Resource Guide for Cancer Patients
The Guide covers legal issues concerning privacy, informed consent, insurance, clinical trials, employment law, disability, liability, guardianship, estate planning, and end-of-life decisions. The Guide is intended to be an informative resource upon which cancer patients and their family members and friends can rely to answer legal questions.
National UNDERInsured Resource Directory & Financial Resource
A resource uniquely tailored to meet your individual situation encompassing financial resources, disease specific resources, location based services, employment aid and general care resources for patients that are not fully served by their current insurance. This resource also contains a list of sample questions that can be used when speaking to your providers or insurance representatives.
National Financial Resource Directory
This resource aides patients when seeking financial relief for a broad range of needs including housing, utilities, food, transportation to medical treatment, and children’s resources. National resources that can help as well as programs in your local area are listed.
Patient Advocate Foundation’s Patient Guides
PAF’s informational brochures & patient guides, including “A Greater Understanding” pamphlet series, are all written by a team of case managers to provide you with needed information.
Insurance Resources & Clinical Trials Tips
Patient Advocate Foundation information about clinical trials
National Patient Advocate Foundation
A national, non-profit patient-advocacy organization for assistance in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels.
Healthcare Reform – Understanding the Affordable Care Act Law
This central source combines news and current discussion surrounding the Affordable Care Act of 2010. This page includes a compilation of national resources and organizations that are experts within the implementation of the Affordable Care Act and references official government sources including Healthcare.gov and respected nonprofits like Kaiser Family Foundation, InsureUStoday and the National Patient Advocate Foundation.
Patient Assistance Programs Offered by Pharmaceutical Manufacturers
Patient Advocate Foundation seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
Patient Advocate Foundation
Provides no-fee professional case management to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis, and employment-related issues.
UCSFOsher Center for Integrative Medicine
A university-based clinic and research center, whose mission is to transform the way medicine is practiced by conducting research on integrative approaches to health, educating students, health professionals, and the community, and treating patients with compassionate care — addressing the physical, psychological, social, and spiritual aspects of the patient.
Hospice Education Institute
An independent, not-for-profit organization, serving members of the public and health care professionals with information and education about the facets of caring for the dying and the bereaved.
Consortium of Academic Health Centers for Integrative Medicine
An organization of 42 highly esteemed academic medical centers across the US. The mission is to help transform medicine and healthcare through rigorous scientific studies, new models of clinical care, and innovative educational programs that integrate biomedicine, the complexity of human beings, the intrinsic nature of healing and the rich diversity of therapeutic systems. Many of the Consortium’s academic medical centers offer clinical services.
There With Care
A non-profit organization providing a range of services for children and families facing critical illness in order to ease the burden of day-to-day obligations during a medical crisis. Their services are limited to Colorado only.
Pharmaceutical Research and Manufacturers of America (PhRMA)
A directory of patient-assistance programs offered by pharmaceutical companies.
From the National Institutes of Health and the National Library of Medicine. Many authoritative links on treatments, coping, nutrition, and the organizations and more.
National Organization for Rare Disorders
National Organization for Rare Disorders (Provides current information on rare diseases, including numerous forms of pediatric cancer and a comprehensive listing of links that offer information and assistance.)
An on-line organization that provides information on patient-assistance programs designed to help with the cost of medicine and health care.
National Hospice and Palliative Care Organization
A national nonprofit membership organization representing hospice and palliative care programs and professionals. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of enhancing quality of life for people dying and their loved ones.
National Council on the Aging — BenefitsCheckUp
The National Council on the Aging developed BenefitsCheckUp — a comprehensive Web-based service to screen for benefits programs for seniors with limited income and resources. Benefits include health care, energy/utility assistance, tax relief, prescription drug benefits, food, housing, transportation, and more.