The Guide covers legal issues concerning privacy, informed consent, insurance, clinical trials, employment law, disability, liability, guardianship, estate planning, and end-of-life decisions. The Guide is intended to be an informative resource upon which cancer patients and their family members and friends can rely to answer legal questions.
A national, non-profit patient-advocacy organization for assistance in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels.
Provides no-fee professional case management to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis, and employment-related issues.
This resource aides patients when seeking financial relief for a broad range of needs including housing, utilities, food, transportation to medical treatment, and children’s resources. National resources that can help as well as programs in your local area are listed.
PAF’s informational brochures & patient guides, including “A Greater Understanding” pamphlet series, are all written by a team of case managers to provide you with needed information.
Patient Advocate Foundation information about clinical trials.
A non-profit organization providing a range of services for children and families facing critical illness in order to ease the burden of day-to-day obligations during a medical crisis. Their services are limited to Colorado only.
A national, nonprofit association of Visiting Nurse Agencies (VNAs) and home healthcare providers. The mission is to support, promote, and advance the nation’s network of VNAs who provide cost-effective and compassionate home care to vulnerable patients. Services include advocacy, education, collaboration, and provision of products, resources, and support to members.
Provides current information on rare diseases, including numerous forms of pediatric cancer and a comprehensive listing of links that offer information and assistance.
An organization of 42 highly esteemed academic medical centers across the US. The mission is to help transform medicine and healthcare through rigorous scientific studies, new models of clinical care, and innovative educational programs that integrate biomedicine, the complexity of human beings, the intrinsic nature of healing and the rich diversity of therapeutic systems. Many of the Consortium’s academic medical centers offer clinical services.
A university-based clinic and research center, whose mission is to transform the way medicine is practiced by conducting research on integrative approaches to health, educating students, health professionals, and the community, and treating patients with compassionate care — addressing the physical, psychological, social, and spiritual aspects of the patient.
An independent, not-for-profit organization, serving members of the public and health care professionals with information and education about the facets of caring for the dying and the bereaved.
A national nonprofit membership organization representing hospice and palliative care programs and professionals. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of enhancing quality of life for people dying and their loved ones.
From the National Institutes of Health and the National Library of Medicine. Many authoritative links on treatments, coping, nutrition, and the organizations and more.
An on-line organization that provides information on patient-assistance programs designed to help with the cost of medicine and health care.
A website that provides drug and disease information. Provides a Manufacturer Information page to link to pharmaceutical company pages.
From the National Institutes of Health and the National Library of Medicine. Many authoritative links on treatments, coping, nutrition, and the organizations and more.
A directory of patient-assistance programs offered by pharmaceutical companies.
Breastcancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer.
Offers support, information, financial assistance, and practical help to people with cancer and their loved ones.
Provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.
Provides online education, publications, educational events, and resources on specific cancers, issues for families, financial help, and integrative therapies.
The Leukemia & Lymphoma Society funds blood cancer research, education and patient services. Its mission: cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve patients’ quality of life.
A comprehensive site for cancer prevention, definitions, clinical trial info, recipes, links to cancer centers, and resources for patients, families and professionals.
A non-profit alliance of the world’s leading cancer centers, focused on improving the quality and efficiency of oncology practice.
Helps cancer patients, families, and professionals get accurate cancer-related information, updates on treatments, and research advances.
The Lazarex Cancer Foundation improves patient access to cancer clinical trials.
Provides free psychological and emotional support, support groups, nutrition guidance, exercise sessions, and social events for cancer patients and families.
Caregiver Media Group is a leading provider of information, support, and guidance for family and professional caregivers.
Powers Care Communities to organize helpers with free group calendars, journals, updates, resources and ways volunteers can help during a crisis.
A non-profit serving facilities that provide lodging and supportive services to patients and families during medical emergencies. Phone: 1-800-542-9730
Offers information, education, services, research, and advocacy to support and sustain the work of families nationwide, caring for loved ones with chronic, disabling health conditions.
Educates, supports, and empowers caregivers nationwide. Provides services to all caregivers, regardless of patient diagnosis or stage, to help transform lives by removing barriers to well-being.
